SAbility

Today we had the most magical day. Forests, fires, marshmallows, bush walks, picnics, mushrooms and friendships. So many smiles, laughs and happy memories. Life is sweet! *access to disabled toilets good. Large open room. Bring your own toilet paper. No change table available at the chookarloo campground*

Rett Syndrome is part of the 70 diseases/syndromes of Childhood Dementia. 1 in 2800 children are affected by one of these debilitating and lethal diseases. Things need to change. Awareness is imperative, research is a game changer. Knowledge is power!!! Greta and I have been lucky enough to be involved in some media pieces this week. I’ll let you know where you can see us! Childhood Dementia Initiative

Mr 11 loves camping 🏕 Greta loves being outdoors and amongst it. Unfortunately, unless I’m holding Greta’s hand or she’s tethered to me (which I rarely do unless there’s a cliff) she will run away and doesn’t understand stop or come back. She is also drawn to water like a Labrador! So, are there any caravan parks, camping grounds or outdoor spaces out there with cabin or area that suit these children with special needs? A small fenced area means that families could enjoy camping together without leaving their special kids at home. A small fence area so that kids with autism, ADHD and other disorders can spend time outdoors with other children safely and don’t bolt! A space their parents could live the “normal” life they are gagging for, for just a few nights. Let me know if you know of any. I’d love to visit them! ⛺️ 🍻 🌲 🍷 🔥