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#Arachnoiditis & Chronic Meningitis Collaborative Research Network
www.acmcrn.org
04/26/2026
Looking for a quick look at who we are, and what we do?
We are an international Arachnoiditis/Chronic Meningitis non-profit(and serving associated conditions like Tarlov, EDS, CSF leak ). We started as a 3 member group in 2016, (Lori Verton, Louise Carbonneau Vermeiren and Dr Terri Lewis) and incorporated as a non-profit in Canada in 2018.
We have grown exponentially since then! Our peer support program, education and global outreach and research programs have been 90% volunteer run since its inception! We are people/patient powered and funded by private donations and support from other Arachnoiditis related foundations and groups.
More information:
www.acmcrn.org
See our ECRD2024 conference related Learning Toolbox here:
https://api.ltb.io/show/ACBIF
We say is a
But we know it's just ."
We know that many "people with back and leg pain that makes it difficult to sit or stand for long periods, who have these unusual experiences of phantom "bee stings", feelings of electricity short circuits, flowing lava (each a form of parasthesia)" etc should be investigated for /Adhesive Arachnoiditis.
Those who have had physical trauma, Spinal pain interventions like epidural steroid injections, spinal surgery, spinal tape etc are especially at risk.
Find out more:
www.acmcrn.org ACMCRN
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