Newborn Screening Collaborative
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Award winning campaign to progress the current UK newborn screening campaign - join us and USE YOUR VOICE!
Children are losing their lives to a treatable illness.
The scientists have done their job. The doctors have done theirs. Now Ministers must act and approve MLD screening.
“In our lab in Manchester, we have worked internationally with multiple groups from around the world to help develop this test, unlike a lot of screening tests, where people worry that we will pick up a lot of kids who don’t have the disease. There have been half a million kids screened across the world now with no false positive results, it is that good.”
The Prime Minister has committed to reviewing MLD screening. Help us hold the Government to that promise: share this post and add your name.
(This video contains selected excerpts from our interview on BBC Radio Ulster.)
12/07/2025
Devastatingly, the UK National Screening Committee has said NO to adding MLD to newborn heel prick test. This is terrible news because
➜ Children can only be treated if diagnosed before symptoms start
➜ Without screening, they’re diagnosed too late
➜ 30 UK children have already missed out on treatment.
We have the treatment. We’re just not finding the children in time.
Parents, families, and supporters speak up NOW:
➜Respond to the consultation and demand MLD be added to newborn screening
➜Copying in your MP
➜Share this post. Use your voice.
No family should lose a child to a disease we can treat—IF WE JUST CATCH IT EARLY.
To find out more on how you can help, please follow the link https://archangel.org.uk/nbs/
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