Muscular Dystrophy Association

📢 Clinical Research Alert for the SMA community!

Researchers at the Center for Cerebral Palsy Research at Teachers College, Columbia University are seeking children ages 5 to 17 living with spinal muscular atrophy who are receiving disease modifying therapy to participate in a pilot study exploring targeted rehabilitation strategies.

The study includes a 3 week intensive rehabilitation program designed to help strengthen muscles, improve movement, enhance neuromuscular coordination, and reduce fatigue.

🔗 Read the full post to learn more: https://mdaquest.org/clinical-research-alert-clinical-study-in-children-with-sma/

Join us for a Live Community Industry Update Webinar presented by Johnson & Johnson to learn about IMAAVY® (nipocalimab-aahu).

This educational webinar is designed for patients, caregivers, and the community to learn more about:
➡️ Generalized myasthenia gravis (gMG)
➡️ IMAAVY® clinical data
➡️ The treatment journey
➡️ Available resources and support

🗓️ Tuesday, July 21
🕛 12:00 PM ET
⏱️ Duration: 30 minutes

🔗 Register here: https://mdausa-org.zoom.us/webinar/register/WN_yoz_YSncTlKrkRJdfaKrhg #/registration

We hope you'll join us for this informative community discussion!