Flex for Kal

Today is World Duchenne Awareness Day (WDAD)—observed every year on September 7 to raise awareness of Duchenne and Becker muscular dystrophy (DMD and BMD). In the U.S. it’s 9/7; elsewhere it’s 7/9 (dd/mm), a nod to the 79 exons in the dystrophin gene.

What’s the dystrophin gene?
• It’s a large gene on the X chromosome with 79 exons. It makes dystrophin, a protein that helps protect muscle cells.
• In DMD, changes in the gene often stop dystrophin from being made, leading to earlier, faster muscle weakness.
• In BMD, the gene often makes a shorter, partly working dystrophin, so symptoms tend to start later and progress more slowly.

Family focus
2025’s theme is “Family: The Heart of Care,” honoring the love, coordination, and advocacy families provide every day.

At Flex for Kal
Our hope is to help and support these families because we know firsthand the challenges we face. We listen, share what we’ve learned, and stand beside families so no one has to walk this road alone.

How you can help today
• Share this post.
• If you’d like to learn more, visit worldduchenneday.org.

By standing together on World Duchenne Awareness Day, we turn awareness into action and action into hope. To everyone living with DMD or BMD, and to every caregiver: we see you, we honor your strength, and we’re moving forward together.

📢 Reminder: Please Share! Marathon is Sold Out, but we still have a limited amount of entries available.

🏃‍♀️ Run the Marine Corps Marathon with Us – Flex for Kal! 🏃‍♂️

Don't forget—join us for our inaugural fundraiser as a charity! We need YOU to help make this event successful and impactful. Whether you're racing for a new personal best or tackling your first marathon, we’re excited to have you on this thrilling journey!

About Flex for Kal:
Formed by two Marine Corps veterans, we're welcoming military friends and all supporters to relive the spirit of the Corps and forge new friendships while championing an important cause.

Why Join Flex for Kal?

🌟 Make a Real Impact: Every step helps support rare disease families with essential resources.

✨ No Registration Fees: Commit to raising $500, and we'll cover your entry cost!

🎉 Experience Community Spirit: Meet incredible people and enjoy the energy of a motivated team.

How to Get Involved:

1. Sign Up: Be a part of the Flex for Kal team and make each step count!
2. Fundraise: Support our mission and help us achieve our goals—every effort matters.
3. Train & Race: Prepare with encouragement and motivation from fellow team members!

Already registered on your own? No problem! You can still join our team and flex for rare diseases and support our cause.

Join Us: Head over to https://www.flexforkal.org/running-application to sign up and learn more.

Together, we can drive change and support more families. Let’s lace up, stay active, and make every step matter. Share this message with friends and spread the excitement! 💪

🇺🇸 We’re excited! The Marine Corps Marathon is celebrating its 50th anniversary, and we are thrilled to announce that Flex for Kal is a Charity Partner!

What does this mean for you?

We have race entries available, so you can join our Flex Crew and be part of this historic event. We're offering to cover your entry fee in exchange for your commitment to fundraising and making a difference in the lives of those affected by rare diseases.

Why join us?
- Secure your spot in one of the most iconic marathons in the world
- Be part of a community dedicated to hope, transformation, and support
- Enjoy exclusive access to our team resources, including fundraising tips and camaraderie

Spots are limited and filling up fast, so don't miss your chance to contribute to something extraordinary.

Are you ready to run for a greater cause? Sign up today at https://www.flexforkal.org/mcm and join us in this mission.

Run. Inspire. Flex for those who can't.

As Giving Tuesday nears its end, it's not too late to join us at Flex for Kal in making a meaningful impact in the rare disease community! As a new 501(c)(3) organization, we are dedicated to funding therapies and research, but our mission goes so much deeper.

Your contributions will directly support:
• clinics with compassionate doctors who turn no one away, ensuring care for individuals beyond childhood.
• We are committed to funding cutting-edge research that can lead to breakthroughs.
• Plus, we aim to empower the competitive spirit by supporting parasports and teams.

Remember, better late than never! Together, we can create tangible change and bring comfort to families facing challenges similar to ours. Thank you for considering a gift to Flex for Kal this Giving Tuesday! 💪

Flex for Kal – Giving Tuesday Fundraiser By Flex for Kal Inc