Cheering for Ellie
Sweet Ellie is 12 years old and was born with a rare form of Koolen-de Vries Syndrome & Epilepsy. What we saw was an empty sac with no baby in it. I was crushed.
05/27/2024
🇺🇸❤️🤍💙🇺🇸🙏🏼
07/12/2023
In the words of Ellie..."We are bustin' out of here!"
Ellie's tests on her heart this morning all look good and the device in her heart is in place where it should be! We will go back in a month for more tests to make sure it's doing its job. All good news! So my little rockstar gets to go home!! Yay!! God is SO GOOD! 🙏🏼❤️
Thank you all from the bottom of my heart for your prayers, encouragement and support. They mean the world to me and I really mean that! Love to all 🙏🏼❤️
03/21/2022
Ellie and I rocked our crazy socks today (in Patterson colors I might add 🧡🐾💙) for World Down Syndrome Day! We have the honor of knowing of loving many with Down Syndrome and we love to celebrate their awesomeness!
🧦💙🧡💛💚💜❤️🧦
03/01/2022
Bringing awareness to Rare Disease Day today! As you know our sweet Ellie was born with the very rare Koolen-de Vries Syndrome. Many others are also fighting rare diseases or are undiagnosed. Love and hugs to all walking this path in life! Ellie is a blessing like no other and she inspires me and so many others on a daily basis!🙏🏼💜
12/04/2021
We hope you are all having a wonderful December so far! Don’t forget to slow down and remember the reason for the season ♥️🙏🏼💚
Miss Ellie finds joy in all the little things! She’s loving dress up/theme days at school this month. This pic was taken on Christmas Tree Day! 🌲♥️
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