HDBuzz

PTC Therapeutics has shared 2-year data on votoplam, a once-daily HTT-lowering pill. In Stage 2 participants, results suggest up to 52% slowing of disease progression.

This article goes through what the data show, what’s still unclear, and how the Phase 3 trial is taking shape.

https://en.hdbuzz.net/two-years-in-new-long-term-extension-data-from-pivot-hd-for-votoplam/

Hey HD clinics — do your patients read HDBuzz?

We hear often that HDBuzz articles come up in clinic appointments — patients who've read our coverage, caregivers who come in with questions, staff who share our pieces in waiting rooms.

That's exactly what we're here for. And this week, we're asking clinics to help Fund the Buzz.

Share our posts. Tell your patients. Point someone to https://en.hdbuzz.net/donate/

The HD clinic community is some of our most loyal readers. Help us keep the lights on for everyone.

345,000 unique visitors.
100 articles.
12 languages.

But behind every one of those numbers is a person, a caregiver at 2am trying to understand a trial result. A trial participant at a clinic appointment wanting to ask their doctor the right question. A family member who just got a diagnosis and doesn't know where to start.

HDBuzz exists for all of them. It always will, as long as our community makes it possible.

Fund The Buzz: https://en.hdbuzz.net/donate/

To kick off Clinic Week during our Fund the Buzz spring fundraising campaign, we're publishing a piece that's been on a lot of people's minds lately: what is a TFC score, and why does it matter so much for the INVEST-HD trial?

If you or someone you love is wondering about votoplam eligibility, this one's for you.

Full article: https://en.hdbuzz.net/the-number-on-the-scale-what-the-tfc-score-measures-and-why-it-matters-right-now/

HDBuzz is launching Fund the Buzz, our spring fundraising campaign!

We’re proudly independent, free to read, and run by scientists who truly understand Huntington’s disease. That independence means everything, but it also means we rely on support from our community to keep going.

Help us keep the lights on (and stay lawsuit-free). Every share and donation makes a difference.

Full Article: https://en.hdbuzz.net/fund-the-buzz-the-8000-reason-hdbuzz-can-tell-you-the-truth/