FIGHT WITH LEXI

UPDATE ON LEXI'S CANCER JOURNEY

Lexi will be going under general anesthesia tomorrow to have a biopsy of her liver. THIS IS NOT FOR CANCER, LEXI IS STILL IN REMISSION! AMEN! The reason for the biopsy is for 2 very important reasons. I will try to break them down the best I can for you!!!!

REASON 1: EARLY STAGE OF LIVER FAILURE

Lexi was starting early stages of liver failure, due to the lack of growth hormones that doctors have been truly expecting due to chemo and radiation treatment. So the plan is to do this biopsy and to see if Lexi has a growth hormone deficiency, which will effect the liver. If this does come back she does, Lexi will have to go on a Growth Hormone for the rest of her life. With the hormone she is taking a chance, small percentage, of getting a brain tumor. If she doesn't take the hormone the doctor said her life span probably would be 7 to 8 years, because of liver failure.

REASON 2: HIGH LEVELS OF IRON

Lexi showed very high blood iron levels in her blood. So the doctors discussed iron levels will also be tested for during the biopsy. I asked the doctor what could cause high iron levels so high, and they did say lexi had so many blood transfusions that it could affect the liver.

I hope the information was clear enough to everyone. We truly thank everyone from the bottom of our hearts that has been supporting and praying for Lexi during her Cancer Journey and also after, because everyday you have to be blessed and be thankful for a new day. I will definitely make a post sometime tomorrow, probably night 🌙. Again, thank you everyone. Let's get the PRAY WARRIOR'S TOGETHER!!!!
# FIGHT WITH LEXI

🎗🎗TODAY IS THE DAY!!! THE DAY LEXI, HAS BEEN WAITING FOR. Lexi is having her TWO YEAR STEM CELL TRANSPLANT WORKUP. When Lexi was diagnosed with cancer for the third time the doctor's thought there was no hope, but with a MIRACLE, because she didn't have a certian mutation she was eligible for a Pherphiphal Stem Cell Transplant. The doctor's explained because of her history, this was going to be a TOUGH BATTLE and usually after ONE YEAR, they say children are safe from relapse. With Lexi they told us TWO YEARS. So, Friday February 17th was 2 years, and today they will do a full workup to see how her transplantis working. They will be checking everything in her blood, doing studies on her lungs and heart. 💛💛

💛I sit here writing this, and I see the fear in my daughter's eyes. She is the MOST POSITIVE TEENAGER I KNOW, but I know she is scared. I am asking all Lexi's prayer warriors please keep lexi in your thoughts💛

🎗🎗All results will not be back for about 2 weeks. 🎗🎗

💛🎗TO ALL LEXI'S PRAYER WARRIORS 💛🎗

I know I was suppose to write an update, but LEXI'S health is difficult. So sometimes I just don't know how to explain it.

Lexi does needs PRAYERS for tomorrow, and thru the weekend PLEASE. Lexi was diagnosed with osteoporosis and ostoepnea. She had a DEXA , bone scane, which confirmed this.

Everytime something is wrong with lexi, when she lost her vision, her thyroid issue, and also puititaury gland in her brain is damaged the doctors always say it is from the radiation or chemo. Lexi has beat cancer 3 times, she has being doing this for over 6 years. She is the strongest 16 yr old I know. (You make decisions to save your children, but these decisions turn into life long issues, it is BS)

So, tomorrow Lexi has to go to CHOP to have an infusion for her bones, but there is always a TWIST. The doctor that ordered this infusion, again to get her bones stronger. We don't want Lexi in a wheelchair. The symptoms of the infusion, and will also tell us that medication is working, Lexi will get FLU like symptoms, and more likely she will get a FEVER.

WELL, FEVER IN OUR HOUSE IS A NO, NO. LEXI IS STILL ON FEVER PROTOCOL FROM ONCOLOGY!!! Anytime Lexi gets a fever we have to go get an IV antibiotic. Lexi and I will be staying close to CHOP in case of a fever in the middle of the night. The doctors said after 48 hours everything subside. PLEASE PRAYER WARRIORS LETS START A PRAYER CHAIN FOR MY WONDER WOMAN 💛💛🎗🎗🧡🧡🎗🎗💚💚🎗🎗