Austin Darr Updates

Fantastic news!
Austin no longer has the wound vac. It will still be awhile for the wound to heal but we will keep it clean and covered with dressings.
Also, he will start going back to his day program on Monday. Only part of the day at first but it’s a start.
We are moving in the right direction!! 💜💚

So good to hear him laugh!! 😂 We got outside this evening for some fresh air and Austin loved it!

We had a follow up appointment with the surgical team on Thursday. We had no idea how much he really had done.

They removed his right colon, 2 sections of intestines and his appendix. 🥺

We knew it would take awhile for him to heal and get his energy back, but had no idea. The Dr. said it was a mess and his body is working hard to heal so he’s going to be tired for awhile.

On a good note, he has gained 3 lbs this week bringing him to 68lbs. We are moving in the right direction!

The wound is also healing nicely even though it too, has a ways to go.

We are so happy the Lord still has a purpose for Austin here on earth. It’s been a tough week but his laughter brings joy that reminds us God is with us always. 💚💜

We were able to take Austin on a walk today to get some fresh air. 🏞️

Please continue to pray for his recovery. He is literally skin and bones. Thankful that feeds are going well and we know it will take some time but it’s hard to see him so frail.

Also, prayers he will get back to sleeping at night and being awake during the day. He is so mixed up right now.

We are happy to be home but can’t wait until we see more smiles and energy. We miss his spark and joy… 🥺

“But for you who revere my name, the sun of righteousness will rise with healing in its rays. And you will go out and frolic like well-fed calves.”
‭‭Malachi‬ ‭4‬:‭2‬ ‭NIV‬‬
https://bible.com/bible/111/mal.4.2.NIV

Settling in and getting things figured out at home.

Hime health came today to put the wound VAC on. Feedings have been going well. And we’ve seen some glimpses of our sweet boy.

Happy to have a long weekend to adjust!

We will start working on a little therapy tomorrow. Austin is pretty weak so it will be little by little. Sadly, because Home Health would not come to do wound vac while he was getting PT, we had to postpone having a physical therapist come out to help. Insurance is frustrating and makes no sense sometimes…

In the meantime we will do our best! One day at a time. 💚💜