ATRX Research Alliance
ATRX Research Alliance is a parent-led global group of families committed to accelerating research.
05/23/2026
Please join our community as we honor and celebrate the life of Joseph Daniel Yeates, “Jojo,” who passed away on May 12, 2026.
We are lifting up his family in our thoughts and prayers as they mourn the loss of their beloved Jojo. Our hearts are with them during this incredibly difficult time.
04/03/2026
We’re almost there and the excitement is building! This year’s conference brings together a global community of families, researchers, and members of industry, all united in advancing support and progress for the ATR-X community. If you’ve been thinking about joining us, there’s still time. We would love to have you in the room for these meaningful conversations and connections. Register now and be part of something really special.
Happy Rare Disease Month!
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