Cure LBSL

✨THROWBACK THURSDAY ✨

In 2015, our co-founders Beth and Mike McGinn met Dr. Ali Fatemi at Kennedy Krieger for the first time and asked him to help find us find a cure for Ellie — a cure for LBSL. And he said yes.

Since then, we have donated millions of dollars to further LBSL research at Kennedy Krieger — including this check for $225,000 in 2019, a record for our foundation at the time! — and we are closer than ever to realizing our dream. That's because of YOU!

Thank you for believing in our mission and supporting us every step of the way, whether that's through donating, volunteering, raising awareness or just showing up for an LBSL family. We wouldn't be here without you!

🧬 THROWBACK THURSDAY 🧬

Some of our Kennedy Krieger researchers and Cure LBSL team met up in Baltimore for the American Society of Gene & Cell Therapy's annual meeting in 2024, which unites scientists from around the world who are working to make gene therapy a reality for patients like ours.

Next week, our researchers from Kennedy Krieger are heading to ASGCT's annual meeting in Boston to give a talk on the LBSL gene therapy in development. We're cheering them on every step of the way!