Periodic Paralysis Association

World Periodic Paralysis Day might have been on March 23rd, but ripples of passion from people in this community are turning into waves of change!

Staci Armbrust was recently invited to the Capitol of Nebraska to receive Nebraska’s 2026 proclamation honoring World Periodic Paralysis Day in person from Governor Pillen and to give remarks about the importance of World Periodic Paralysis Day! The PPA would like to congratulate Staci on her passion, hard work, and advocacy.

State Proclamations are a big deal raising awareness for the first time at the State level for periodic paralysis! They not only honor 3/23 as World Periodic Paralysis Day, but help show the local constituent’s need for better awareness and funding for periodic paralysis research when the PPA meets with House and Senate representatives in Washington DC. Together these initiatives help power progress for periodic paralysis!

Would you like to power up periodic paralysis like Staci? Keep an eye out for details on how you can get involved in the Periodic Paralysis Association’s Advocacy Program and save the date for the 2026 Periodic Paralysis Conference October 10 & 11 at the Hilton Lake Buena Vista in Florida.

Did you know that today is World Health Day?

The theme of World Health Day 2026 is: Together for health. Stand with science. At the PPA we believe that connected, we are strong! Scientific collaboration and progress is only possible when we work together. The PPA is proud to bring together a community of researchers that create groundbreaking research, clinicians delivering the care and support patients need, advocates creating change, and patients and families with lived experience to power progress for periodic paralysis together. Today we celebrate the power of collaboration and all of the researchers powering progress for periodic paralysis, especially Dr. Stephen Cannon, Dr. William Harr, Dr. Karen Suetterlin, Dr. Mark Rich, Dr. Heather Allen, Dr. Tyler Nelson, Alaina Waters, and Dr. Aida Calderon-Rivera.

Real change for people with periodic paralysis requires action… and World Periodic Paralysis Day is officially powering that! Not someday, not tomorrow, now!

We are thrilled to share the very first World Periodic Paralysis Hill Day in Washington DC hosted by the Periodic Paralysis Association. This week board member, Leslie Wengler and President, Cienna Ditri came together to advocate on Capitol Hill to ensure the needs of this community are no longer overlooked. Together they asked that awareness, research, and advocacy for periodic paralysis are supported by the NIH, CDC, and Department of Transportation. They shared real life lived experiences that emphasize the change that is needed to give everyone in our community the quality of life they deserve throughout all areas of life. Change is coming… stay tuned!

1 day until World Periodic Parlaysis Day 2026! ✨⚡️🌃🐭 How are you celebrating?
An easy way to get involved is to show your zeal for teal! Wear your World Periodic Paralysis Day T-shirt or any teal/turquoise clothes and post a picture to social media! Remember to tag us and use , together we can power up periodic paralysis!

Looking for more ways to get involved? Check out 6 more ways you can get involved on the 2nd picture or visit www.worlperiodicparalysisday.com to share your story, become an ambassador, and celebrate with us!

None of this would be possible without our lead sponsor making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email [email protected]