CF MUMMY
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Mumma of 4 | 2020 Australian of The Year, SA Local Hero - Motivational Speaker & Author
🌹CF Warrior turning pain into purpose.
24/06/2025
🙌🙌🙌🙌🙌🙌
🌹Access Achieved🌹
Trikafta will officially be expanded on the PBS from 1st July, giving hundreds more Australians living with cystic fibrosis access to this life-changing therapy, including those with rare and ultra-rare mutations who have never had access to a modulator before.
This expansion includes:
* Approximately 250 more people eligible for Trikafta
* Approximately 45 people gaining access to a CF modulator therapy for the first time
* Inclusion of 271 additional mutations
* A new option for Australians living with CF aged 2+
“What once felt out of reach is now within our grasp.” Dr. Jo Armstrong, CEO, Cystic Fibrosis Australia
This progress is only possible because of the tireless advocacy of our community and the government’s willingness to take a pragmatic, compassionate approach to access.
But we’re not done. Not until every person with CF, including those with Class I mutations, has access to the treatment they need and deserve.
Together, we are rewriting the future of cystic fibrosis in Australia.
Read the full communique here: https://bit.ly/40kfi7D
Join us LIVE on the CFA page from 9am (AEST) today, as the Federal Health Minister, The Hon Mark Butler MP delivers this exciting announcement.
10/06/2025
Thanks to loverbooth for all the fun moments captured!!
See yourself? Or a friend?!
Tag away people!!!
CALLING ON OUR AMAZING SA COMMUNITY!
I’m reaching out in the hope someone might be able to help with a very special donation.
I have a truly unique piece of memorabilia that I’d love to have professionally framed in time for our Cystic Fibrosis SA fundraising luncheon this Saturday. This one-of-a-kind item will be auctioned on the day, with 100% of proceeds going to support those living with CF.
Our community’s generosity has already been incredible, but I’m a little stuck on this one and would be so grateful for support! If you or someone you know might be in a position to donate the framing, please reach out — I can drop the item off ASAP and provide all the details you need.
Thank you so much in advance. Every little bit helps and your kindness truly means the world!
Click here to claim your Sponsored Listing.
Emmah Evans is CF Mummy
2020 SA Local Hero, Emmah Evans is an author, mother, motivational speaker and Cystic Fibrosis Ambassador. Emmah lives with the life-threatening lung disease Cystic Fibrosis and knows firsthand the challenges that come with this debilitating invisible disease.
With a life expectancy of just 37, was given up for adoption at only days old after doctors believed she wouldn’t survive. Now in her thirties, Emmah has a list of credible achievements and inspires many globally.
An Ambassador with the Cure4CF Foundation, Emmah is an active campaigner, raising awareness through her social media platform, CF Mummy. As well as speaking at a variety of events across Australia, Emmah mentor’s many within the CF community. Emmah is passionate in raising funds for Cystic Fibrosis; having raised more than $50,000 to support research in finding a cure.
Emmah published her first book, her autobiography; The Words Inside, at 17, going on to win national Australian magazine Girlfriend, Girlfriend of the Year award and becoming the National Youth Ambassador for Cystic Fibrosis.
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