Purple for Rett

💜 7 FACTS for 7 DAYS 💜

we’re half way to reaching our goal, so share like crazy & help us raise awareness for Rett Syndrome! 🦋

Day 13 💜

There’s no cure for Rett syndrome yet, but the right therapies can make a huge difference.

Each therapy helps in its own way:
💜 Physiotherapy strengthens muscles and supports mobility.
💜 Speech and communication therapy helps with eye-gaze devices and other ways to express needs.
💜 Occupational therapy focuses on daily activities and independence.
💜 Music, hydro, and sensory therapies bring calm, joy, and stimulation.

Progress may be slow, but every step — every movement, every smile — matters. These therapies don’t just support the body, they help bring connection and confidence back into daily life. 💜

Day 12 💜

Behind every child with Rett is a family living a life of love, strength, and constant adjustment.

Parents often face endless appointments, sleepless nights, medical emergencies, and emotional ups and downs — all while trying to keep a sense of normal life.

Siblings grow up learning empathy, patience, and what real courage looks like.

Families living with Rett are warriors — they love fiercely, advocate tirelessly, and keep hope alive every single day.

Day 9 💜

Communication

One of the hardest parts of Rett syndrome is that it often takes away the ability to speak words out loud.

But here’s what’s important to know:
💜 Rett does not take away understanding.
💜 They are highly aware of the world around them.
💜 They think, feel, and understand far more than they can show.

With the right tools — like eye-gaze devices, picture boards, or assisted communication technology — they with Rett can share their thoughts, feelings, and personalities.

They are smart, aware, and deserve to be heard. Their voices may be different, but they are still there.