Our Rare Life
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☀️ Raising awareness for PPA2
🤍 Honouring our angels, Sonny & Airlie
☀️ Turning our pain into purpose
🤍 Rare disease Advocacy
https://linktr.ee/ourrarelife
730 days since we last heard your voice or saw your beautiful face.
We miss you more than words can hold.
Wiggle, wiggle, our beautiful girl 🤍
Love always,
Mum & Dad
02/05/2026
🎉4 Days until PPA2 Awareness Day!
Though they are no longer here, their impact lives on in every story we tell, every ounce of awareness we raise and every life we hope to protect.
Everything we do, we do it for and because of you ❤️
02/05/2026
02/05/2026
Callie McKinney was born with a rare genetic condition that puts her at risk of sudden cardiac arrest
02/05/2026
02/05/2026
Hey you — yes, you.
We need you tomorrow.
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Perth, WA
