Singlesnowflake

Another Community Partner Helping Spread Myasthenia Gravis Awareness

We are grateful to share that another local clinic has welcomed our Myasthenia Gravis awareness pamphlets and is helping us educate the community about this rare neuromuscular disease.

Every pamphlet displayed is an opportunity for someone to learn, recognize symptoms, support a loved one, or connect with valuable resources. Small acts of community support can make a big difference for those living with Myasthenia Gravis.

A heartfelt thank you to this clinic and its staff for helping us raise awareness and support those affected by MG. Together, we are making sure no one faces this journey alone.

Awareness • Education • Support • Advocacy

SingleSnowflake.org

SSFMGAA is officially launching PRE-ORDERS for our 2026 MG Awareness T-Shirts 👕💜

Every shirt purchased helps fund this year’s Myasthenia Gravis Awareness Walk and supports advocacy, education, and community care.

Wear, support and Walk with us.

Pre-order yours today and be part of something big.

Email: [email protected]
Text 902-900-0623

Lucasville Community Association Thank you for your write up on me

Last Friday evening Angie Emmerson-Downey and I attended The Love Gala 2026 celebrating the unsung heroes in our communities. To our surprise we have an unsung hero that was being honoured from our community of Lucasville/Halifax. Nadine is the daughter of Warren and Jean Parsons.

Nadine, was awarded the Humanitarian Award (Love Award).

Nadine Parsons, celebrating the person who brings light into the world through radical love, compassion, and service. This award honours an individual whose selfless actions uplift others, heal and inspire hope. Their life’s work is a testament to love in action, transforming lives not for recognition but because they believe in the power of humanity at its best.

Nadine Parsons is a Myasthenia Gravis advocate, nonprofit leader, and the founder and CEO of Single Snowflake Myasthenia Gravis Advocacy Association, a Halifax-based organization dedicated to advocacy, awareness, and education around rare diseases.

As a Black woman living with Myasthenia Gravis herself, Nadine transformed personal adversity into public action. She is the creator of “The Mighty Giant” based on Myasthenia Gravis stage awareness play, using live performance to educate communities about invisible illnesses, and the organizer of Myasthenia Gravis awareness walks that bring together patients, families, and community partners.

She founded Single Snowflake Myasthenia Gravis AA and has continued to support its mission through personal fund outreach efforts, including awareness materials and promotional initiatives, while serving in an unpaid leadership role.

Nadine is also the author of an upcoming book, set to be released at the end of the year on multiple platforms, it explores her journey through traumas, life before and during Myasthenia Gravis, and the experiences that shaped who she is today.

Through her advocacy, Nadine as a black woman played a key role in June being officially proclaimed Myasthenia Gravis Awareness Month in Halifax, Nova Scotia, helping elevate rare disease awareness at the municipal level.

Nadine also, focused on improving access to information by distributing Myasthenia Gravis educational pamphlets in clinics and specialist offices, helping ensure patients and healthcare providers had access to her organization and “what is MG”.

Nadine and her organization have partnered with the Myasthenia Gravis Foundation of America (MGFA), and she has been interviewed by MGFA, featured in broadcast media, and interviewed by third-party pharmaceutical company, to ensure patient voices are represented in healthcare conversations.

As a woman leader living with a rare disease, Nadine’s work reflects resilience, compassion, and community-driven change. Her advocacy reminds us that even one voice, like a single snowflake can create lasting impact.

Congratulations Nadine!!

Country Cares 2025