The Lost Labia Chronicles
I create content for all things #lichensclerosus and share support resources. #patientpartner for LS
01/12/2024
Hey, beautiful soul!
Mark your calendars! World Lichen Sclerosus Day is coming up and just around the corner.
January 17th is World Lichen Sclerosus; this is a day to raise awareness, celebrate advances made in research, and push for more change for a better future for all with lichen sclerosus.
Join Clare and me, on January 17th for our Instagram live at 12 pm Eastern Time/ 5 pm UK time.
Clare is one of the OG patient advocates and has been fighting hard and tirelessly for our community for years. She is the co-founder of lichen sclerosus/ vulval cancer UK awareness and a brilliant patient advocate.
During our live, we will address myths about LS, recent scientific advances, the current state of LS research, awareness efforts and much more!
Please share this post widely in your support groups and if you can, please join us and bring your questions.
If you cannot make it, the replay should be up shortly after we end the live.
With love,
Jaclyn
07/28/2023
Hey, beautiful soul.
Happy Friday.
A while ago I shared an online survey with the online community asking questions about sexualhealth.
One of the biggest pain points that was mentioned was low libido.
So many folks struggle with lichen sclerosus and low libido.
The truth is, libido is multifaceted and complex. Therefore, we brought expert speaker Dr. Lori Brotto on to discuss this topic. Dr. Lori Brotton is a Professor in the UBC Department of Obstetrics and Gynaecology, and a Registered Psychologist in Vancouver, Canada. She has been the Executive Director of the Women’s Health Research Institute of BC located at BC Women’s Hospital since 2016. Dr. Brotto holds a Canada Research Chair in Women’s S*xual Health.
She is also the author of Better S*x Through Mindfulness: How Women Can Cultivate Desire and The Better S*x Through Mindfulness Workbook. I own both and they are brilliant; highly recommend everyone order a copy of both.
To learn more about lichen scleorsus and low libido, click on the link in my bio to watch the video.
With love,
Jaclyn
03/24/2023
Hey, beautiful soul. Happy Friday!
I hope you are doing well and staying hydrated. If not, this is your reminder to drink some water.
Alright, today’s YouTube video is one that has been highly requested and I am happy to share it is now live on LSSN’s YouTube channel. Building on our seggsual health series, the focus of this video is clitoraal issues and lichen sclerosus. In this video, I touch on loss of sensation due to clitoraal fusing (something many of us with LS have). Further, I share three evidence-based options to help release the fusing and increase sensation (thereby increasing seggsual satisfaction).
Click on the link in my bio to watch the video today! Alternatively, DM me ‘video link please’ and I’ll get that to ya!
Don’t forget to subscribe to LSSN’s channel (which is where I create LS videos) and leave a like on the video so we can show the algorithm that LS information is important.
There’s a lot to digest in this video, but I hope it provides you with a sense of hope!
If ever you are struggling and need extra support, I offer 1:1 LS Peer Support Calls (link in my bio).
With love,
Jaclyn
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