WAMES

Evelien is rarely able to go outside.

"This does not stop me from continuing to discover beauty around me." She captures photos on her phone and posts them for anyone to view and download for free.

"I hope that I can pass on a little joy to others with this."

De schoonheid van de natuur Mijn naam is Evelien van den Brink. Ik heb ME sinds 1998. Ik kreeg een longontsteking en vervolgens nog eens griep en daarna ben ik nooit meer gezond geweest. Het was een abrupt einde van een zorge…

OT Abby says PEM/PESE means the cost of exertion is no longer delivered at the point of exertion. Instead, it arrives later.

Learning to read the signals involves noting the context. "I can't cook is categorical. I can’t cook a full meal at 4pm after a high-demand afternoon without having rested first, is contextual."

How to Tell the Difference Between a Limit and a Fear The distinction that matters most, and why it's the hardest one to make.

ICE (In Case of Emergency) Carers are advised to make an emergency plan for yourself and all those you look after, so care can continue and there’s less to worry about if something goes wrong.

Carers Wales suggest things to help: Emergency Card, Tips, online tool.

https://www.carersuk.org/wales/help-and-advice/practical-support/getting-help-in-an-emergency/

Cofrestrwch nawr ar gyfer gweminar ME Voices Cymru ar ddydd Llun 29 Mehefin, 1230-1330, pan fydd BIP Hywel Dda yn rhannu sut y gall eu Gwasanaeth LC a ME/CFS gefnogi pobl sy'n byw gyda ME/CFS yn y 3 sir yng ngorllewin Cymru: Ceredigion; Sir Gaerfyrddin; Sir Benfro.

https://tinyurl.com/5y8btxpj [email protected]

Excerpt from a Carers week poem by Ffion:

Thank You, To The Good Man In My Life.An "electric shock" shakes me ... malevolently wakes me -
I guess the ANS is malfunctioning - again!

Then, suddenly, silently, appears - The Good Man ...
His presence a balm to my burnt-out brain ...

CARERS' WEEK: 8TH-14TH JUNE 2026 CARERS' WEEK: 8TH -14TH JUNE 2026 Thank You, To The Good Man In My Life Post-Covid vaccine, I'm shot from sleep each morning, Gnawed by na...