Triumph For Tomas
Our objective is the promotion and protection of good health among people suffering from Pelizaeus-Merzbacher Disease (PMD) and gene-linked disorders.
18/05/2023
Why is this even legal in 2023....
As if having a severely disabled child doesn't make life difficult as it is but you have holiday companies charging extortionately inflated prices for a wheelchair accessible transfer from airport to hotel.
loveholidays charging £79.49 per person more for a wheelchair accessible vehicle
On The Beach Holidays charging nearly £30 per person more then a standard private transfer
easyJet, Jet2.com & Jet2holidays and TUI don't offer wheelchair accessible vehicle options on their website. I do know Tui offer wheelchair accessible vehicles country dependent, as they offered us one for Tunisia, then changed their mind a few months before and then tried to charge us £110 for a mini bus Instead. So other countries they will probably have an option available
How is this even happening in this day and age.... enough is enough of the discrimination!
Why should a family of 4 Have to pay £318 more for a holiday compared to someone who is physically able
To the mom who didn’t get “just a healthy one”:
A healthy baby .
That’s what you want.
Boy or girl? Doesn’t matter.
Just a healthy one.
With ten perfect fingers and ten perfect toes.
A tiny smile and button nose.
A brain that works as mine and yours.
Tests coming back with perfect scores.
A heart that beats strong—the rhythm of drums.
And the in and out breath of healthy lungs.
But then you find out it won’t be so.
An unhealthy child— so much unknown.
A journey full of winding roads.
Ups and downs. Such highs and lows.
A little one fighting for their life—
And you, strong beside them in perfect stride.
Just pushing them forward with all that you are— a mother who hasn’t backed down thus far.
This motherhood it will indeed be hard.
The heartbreak will leave inevitable scars.
Not a motherhood you had ever planned for—
But it won’t be less. It will be more.
More love needed and more to give.
An understanding compassion that is so so big.
More strength than you had ever known.
A faith in God and Him alone.
You’ll learn to hope beyond all reason.
And lay down burdens in every season.
You’ll fight and give up and fight some more.
You won’t be stopped by seemingly closed doors.
You’ll give more than you knew you could.
And though you’ll grow weary you’ll still see the good.
Yes this child— unhealthy as they may be.
This child has allowed you so much to see.
Joy and beauty.
Pain and sorrow.
A gratitude for every single tomorrow.
This child is adored— a gift from above.
A newfound passion full of motherhood love.
So this is to the mother of an unhealthy child.
Who holds up her head, moves forward and smiles.
Your motherhood was not the way that you planned.
But today you love more— and stronger you stand.
Author Unknown
And I'd do it all over again!
06/05/2023
Tomas was hooked on the Coronation today
And loved being crowned King at home lol
Click here to claim your Sponsored Listing.
Category
Contact the organisation
Address
Chatham
ME57PD