Get George Moving

Apologies for the long wait for updates…inhibitor treatment of Trametinib has given George some nasty side effects since August. Many skin wounds, skin issues, fatigue, sickness, a few more hospital stays and the rest…but George is made of stronger stuff! Not only is he still at school full time (thanks to the amazing staff who have nurtured and supported him since S1) but doing 1 day a week at Borders College and loving it!

Its been a tough time but again friends and neighbours have stepped up and helped and we really appreciate this. The best news is that after only 10 weeks of treatment his October MRI scans showed improvement and tumour disease in brain has reduced so the battling is worth it. Image below by permission of George shows his original pre treatment head scan (right) with white area in centre the disease compared to left MRI head scan taken in October… we arent getting ahead of ourselves but its a relief to see after the battering George has taken. Next step is to try and get some support moving forward as we sure could do with some… George is still desperate to live his life like any 16 year old!

Back at hospital for the weekly checks, bloods etc. Really nailed the needles this week on his own. Its not something that gets easier with time! Helped by his fab Lochranza team though! Week 1 of Trametinib done…

Well, we have been a bit quiet lately as George recovered from his 22nd neuro surgery (stitches wouldn’t heal so a first set of staples!) but today after only weeks from his operation he competed in the SDS National Junior Swim Championships winning Gold! It was also 5 years today since winning his first national medal! Sorry for any of you who are squeamish but George insists we post the staples photo! So grateful to all who continue to support George. Next up this month: scan time again so fingers crossed 🤞 😩🥇🏊‍♂️