Definitely Not The Waltons

Bit late to posting but last week was honoured to be invited by@Genetic Alliance to attend event

collectively isn't even that rare - 1/17 people in the UK are affected by a rare disease - over 3.5mlion people - & yet research, therapies and drug development for this community does NOT attract the likes of big pharma or genetic research because the cohorts of each disease individually tend by definition to be comparatively small 😔
As the mother of a young person with a collection of and disease this resonates hard
Collectively our voices are stronger & no one should feel isolated, alone or unheard/unseen

in one of our favourite places & indulging "sans enfant".... because ❤️ it's the 3000 day of

Milo would like to know if dogs can eat asparagus.... he's asking for a friend apparently.... 🤦🏽‍♀️