Reverse Rett

"Ryan took on the challenge that is Tough Mudder and completed it for an amazing 4th time.

This is the second year that he has ran it in Erin’s memory and has raised £295 for Reverse Rett this time around.

Erin touched so many lives in her short time here with us and her family are truly touched that she continues to inspire so many and lives on in our hearts and memories."

Angela Gannon, Erin's mum 💜

Hats off to Ryan for taking on Tough Mudder in memory of Erin 💪

We are truly thankful that despite their loss, Erin's family continue to support our work and all our families 😍

Erin will never be forgotten 💜

A huge THANK YOU to every single person who donated, doubled their donation, and shared our campaign during the Big Give Small Charity Week 💜

The money raised means we can begin funding our first Family Advocacy and Care Navigation Lead – a role dedicated to helping families navigate the complex systems they face after a Rett syndrome diagnosis and beyond.

For years we've supported families every step of the way. Thanks to your generosity, we'll now be able to provide this vital support in an even bigger and better way 😁

As Simone, mum to Edie and Ivie, beautifully shared:

"Reverse Rett has also given me the knowledge and confidence to fight for my girls—to ask questions, to advocate for them, and to make sure their voices are heard. They’ve shown me that the thoughts, fears, emotions, and even the little victories we experience are all valid, and that so many other families truly understand exactly how we feel.

Through the events, the support, the research updates, and the incredible community they’ve built, they’ve given our family something we all need: hope. Hope that the future can look different. Hope that the research being funded today could change the lives of children like Edie and Ivie tomorrow.

I honestly don’t know where we’d be without Reverse Rett. They remind us every day that we’re not alone, that our girls matter, and that there are people working tirelessly to give them the future they deserve."

You can read more at the link below 💜

https://www.reverserett.org.uk/smallcharityweek/