Addy's Batten Adventure

Addy's Batten Adventure

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Addy, being a voice for the voiceless through all the highs, lows & everything in between of Batten Disease, CLN2.

Photos from Addy's Batten Adventure's post 06/06/2026

HAPPY 13TH BIRTHDAY TO ADDY'S BROTHER SAMUEL!

The fun-loving, resilient beyond words, caring, rubik's cube crazy, creative, handsome, joking, floppy haired, croc wearing, flying banana goalkeeper, sport sprinting, fiercely protective, Michael-Jackson dancing, adventure seeking, loving sibling, dog doting, and all-time 24/7 super son. We could not be prouder of the individual you are and person you are turning into. You have overcome more than most, with a smile on your face and a giggle in your heart.

Why not join us in wishing Addy's brother a Happy 13th Birthday.

Photos from Addy's Batten Adventure's post 01/06/2026

Sometimes after long school terms, very warm weather, and lots of family times, we all just need some time indulging in our own interests. This weekend

Hayley got the pottery wheel our and made some lovely clay creations.

Addy enjoyed a couple of shopping trips, lots of The Lion King in many different formats.

Samuel's broken collarbone is frustrating him so he gamed with his friends online.

And I spent time in the garden, and building a fish pond for Addy.

Many happy heads! 😊

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