Power In Me Foundation

we are thankful to Dainik Bhaskar for supporting our cause and Voices for ground level challenges for Rare diseases community. Here is the detail of our Thalassemia day Special program for Thalassemia & Hemophilia patients in Singrauli. Key issues were raised by patients & existing support programs by government were explained during this program.

You can read Article online at https://epaper.bhaskarhindi.com/c/79826335

On 8th May, 2026 we are celebrating & creating awareness about Hemophilia & Thalassemia A District Hospital & Trauma Centre. Every Hemophilia patient & thalassemia patient with family is invited.

**कार्यक्रम का मुख्य उद्देश्य**
हीमोफिलिया और थैलेसीमिया आनुवंशिक बीमारियाँ हैं। जहाँ हीमोफिलिया में चोट लगने पर रक्त का थक्का नहीं जमता और जोड़ों में दर्द व सूजन (Joint Bleeding) जैसी समस्याएं होती हैं, वहीं थैलेसीमिया में शरीर में हीमोग्लोबिन की भारी कमी हो जाती है, जिससे मरीज को बार-बार रक्त चढ़ाने की आवश्यकता पड़ती है और शरीर में अत्यधिक कमजोरी व हड्डियों की विकृति जैसे लक्षण दिखाई देते हैं।
# # # **प्रमुख चर्चा के विषय**
इस जानकारीपूर्ण सत्र में प्रतिष्ठित विशेषज्ञों (Eminent Speakers) द्वारा निम्नलिखित महत्वपूर्ण विषयों पर विस्तार से जानकारी साझा की जाएगी:
* **सटीक निदान (Diagnosis) और आधुनिक उपचार:** बीमारी की जल्द पहचान और सही प्रबंधन।
* **दिव्यांगता प्रमाण पत्र (Disability Certificate):** शासन द्वारा निर्धारित प्रक्रिया और इसके लाभ।
* **दिव्यांगता पेंशन:** पात्र रोगियों के लिए आर्थिक सहायता और पेंशन योजनाओं की जानकारी।
* **बोन मैरो ट्रांसप्लांटेशन (BMT):** थैलेसीमिया के स्थाई इलाज की संभावनाओं पर चर्चा।
* **NHM-भोपाल की नई पहल:** राष्ट्रीय स्वास्थ्य मिशन (NHM), एवं RBSY मध्य प्रदेश द्वारा इन बीमारियों के लिए शुरू की गई नई सुविधाओं और सहायता कार्यक्रमों का विवरण।

Also inviting sponsors who would like to sponsor patients food/snacks packet. DM for info.

Community is the Best Medicine: Healing Beyond the Individual

​Science confirms what we’ve always felt: we aren't built to heal in isolation.

​The 'Circle of Care' by Power In Me Foundation highlights a powerful truth: the "Solo Situation" isn't just lonely—it’s a physiological hazard. Chronic isolation triggers systemic inflammation and accelerates disease progression. Conversely, being part of a supportive community acts as a biological buffer, strengthening our immune systems and fostering neuroplasticity.

​Why Your Support Matters
​At Power In Me Foundation, we are bridging the gap between isolation and recovery. Through our 'Year of Rare' 2026 initiative, we are building infrastructure that transforms lives by:

​Reducing Systemic Inflammation: Moving from high-stress "hazard" zones to supportive community circles.

​Boosting Cardiovascular Health: Lowering strain and blood pressure through consistent social connection.
​Enhancing Neuroplasticity: Stimulating new neural connections and oxytocin release through meaningful interaction.

​Extending Longevity: Reducing cognitive decline and promoting faster recovery from mental health conditions.

​Join Our Mission
​Healing is a collective effort. To expand our reach and provide these vital 'Circles of Care' to those navigating their darkest hours, we need your partnership.

​Your contribution directly funds:

​Support group infrastructure for rare conditions and mental health.

​Community-driven wellness programs and awareness workshops.

​Resources for active recovery and long-term wellbeing.

​Invest in the Science of Connection.

​Support the Power In Me Foundation today and help us turn isolation into impact.

​🔗 Donate/Partner with us: www.powerinme.org
📍 Reg No. 1109 under section 60 Delhi/NCT | Certifications: CSR1, 80G & 12A

​

The Economic Paradox of Hemophilia: Reactive vs. Proactive Policy 🩸💼

​Following up on our discussion about timely intervention, let’s look at the specific impact of policy on Hemophilia. The difference between "On-Demand" treatment and "Prophylaxis" isn't just medical—it's a massive socioeconomic divide.

​The Power In Me Foundation is highlighting the "Cost-Concentration Fallacy." When government policy only reacts to pain, it inadvertently creates permanent disability.

​🚫 The Reactive Cycle (On-Demand Only)
​The Path: Internal bleeds → Cartilage erosion → Full joint destruction → Wheelchair dependency.

​The Economic Hit: Parents must withdraw from the workforce for 24/7 care. The state faces higher lifelong costs through disability pensions and frequent surgeries.

​✅ The Proactive Cycle (Prophylaxis Policy)
​The Path: Early screening + preventative factor treatment = Preserved joint health.

​The Economic Win: Individuals remain productive, families stay financially active, and the "Life-Course Approach" leads to significant long-term savings for the GDP.

​🤝 Calling All CSR Leaders
​Corporate Social Responsibility is the bridge between policy and impact. By supporting the Power In Me Foundation, your organization can:

​Fund Preventative Care: Help us provide the "Factor" therapy that acts as a bridge to independence.
​Support Skill Training: Ensuring those with rare conditions have the tools to remain economically active.

​Drive Policy Change: Join us in advocating for Prophylaxis as the standard of care in 2026.
​Investing in Prophylaxis isn't just a donation; it's an investment in a dynamic, resilient workforce. Let’s shift the narrative from "Managing Disability" to "Fostering Autonomy."

​How can your CSR wing help change a life today?
​📍 Donate: Scan the QR code below
📞 Collaborate: 8851537816
📱 Instagram:

​ SocialImpact CorporateResponsibility ProphylaxisSaveLives EconomicGrowth

Early Intervention Isn’t Just Healthcare—It’s Economic Strategy 📉💡

​When we ignore the early signs of progressive health conditions, we aren't just failing individuals; we are creating a cycle of "Permanent Disability" that exhausts families and strains the state.

​The Power In Me Foundation highlights two very different paths for our society in 2026:

​🔴 The Cost of Inaction

​Progressive Decline: Manageable symptoms turn into full functional loss.

​Family Dependency: Caregivers are forced out of the workforce to provide 24/7 support.

​State Burden: Depleted family resources lead to high, lifelong state dependency costs.

​🟢 The Power of Timely Intervention

​Early Screening: Catching conditions before they escalate.

​Independent Living: Maximizing personal autonomy and productivity.

​Sustainable Lives: Families remain economically active, leading to significant long-term savings for the government.

​The Bottom Line: Higher initial investment in rare disease support leads to a more resilient workforce and a lower societal cost.

​Let's move from managing disability to fostering independence.

​📍 Support the Movement: Scan the QR code in the image to donate. Companies can support through CSR funds too.

📞 Connect: 8851537816
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​ Sustainability