Visual Snow Initiative

📚 Visual Snow Syndrome is now featured in Otoneurology and Vestibular Medicine: A Clinical Handbook, published by Springer Nature!

The dedicated VSS chapter (pages 541-547) helps bring greater medical recognition, awareness, and education to healthcare professionals around the world. 🧠

As more trusted medical textbooks include Visual Snow Syndrome, more physicians can learn to recognize its symptoms, improve diagnostic accuracy, reduce misdiagnosis and marginalization, and better support people living with VSS. 💙

Every new educational resource is another step toward advancing understanding, improving care, and increasing awareness of Visual Snow Syndrome.

🔬 King’s College London Seeks Volunteers for Visual Snow Syndrome Study!

Researchers at King’s College London are recruiting adults aged 18+ with and without Visual Snow Syndrome (VSS) for the VISIONS Study (Visual Snow Investigation of Noise in Sensory Processing).

Eligibility also includes:
✅ Able to provide informed consent in English
✅ Able to attend one in-person study visit at King’s College London in London, UK
✅ Willing and able to complete the study procedures

The visit will last approx 90 minutes and will include computer-based visual tasks, questionnaires, and assessments related to visual imagery and synaesthesia. Participants with VSS will also use an augmented reality simulation to recreate their visual snow symptoms.

Participation will help researchers better understand how the brain processes visual information in VSS and may support the development of future treatments. 💙

💷 Participants will receive £25 as a thank-you for their time, a small reward for making a big difference in advancing research!

📧 Contact: [email protected]

https://www.visualsnowinitiative.org/research/kings-college-london-visions-study-visual-snow-research/

❓What ICD-10 codes are used for Visual Snow Syndrome in regions where ICD-11 is not yet implemented?

As more countries transition to ICD-11, it will become the global standard for documenting and classifying Visual Snow Syndrome (VSS). However, many healthcare systems still use ICD-10.
In these regions, healthcare providers may use codes such as H53.8, H53.9, or H53.19 to document Visual Snow Syndrome. While these codes do not fully capture the condition or all of its visual and non-visual symptoms, they may help support clinical documentation, patient care, and access to certain healthcare resources until ICD-11 is more widely adopted.

📖 Learn more about ICD codes for both Visual Snow Syndrome (the condition) and Visual Snow (the symptom) on our Visual Snow ICD Codes page.

🔗: https://www.visualsnowinitiative.org/visual-snow-icd-codes/

📱New Resource for the Visual Snow Syndrome community!

Created by software developer and Simple Questions Podcast host Dylan Carnahan, VSS Guide is a new app designed to help people living with Visual Snow Syndrome (VSS) better understand, explain, and navigate the condition.

Features include:
👁️ Symptom simulators for visual snow, palinopsia, and eye floaters to help demonstrate what you see.
🧠 Guided neuro-optometric therapy exercises
📚 Easy-to-understand educational resources about Visual Snow Syndrome.
🌙 A low-contrast "Visual Quiet" interface designed to create a more comfortable viewing experience for people with light sensitivity.

Dylan developed the app after his own VSS diagnosis, with the goal of creating a practical resource that makes it easier for people to communicate their symptoms and access helpful information in one place.

📲 Download VSS Guide on the Apple App Store via the link in our bio

💙 Thank you, Dylan, for creating this valuable new resource for the VSS community.

🔗: https://www.visualsnowinitiative.org/awarness/vss-guide-a-new-app-designed-to-help-people-with-visual-snow-syndrome/