Motor Neurone Disease NZ

Motor Neurone Disease NZ

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Motor Neurone Disease NZ is a not for profit organisation that supports people with MND.

'He was a real Kiwi bloke': Wife shares story to raise awareness of MND 05/06/2026

The first thing people noticed about Myles MacDuff was his presence.

Not just the physical strength that made him a respected builder and rugby player, but the way he showed up for the people around him.

He was the friend shouting the next round, the father on the sideline cheering on his children and the loyal mate who always made time for others.

“He was a real Kiwi bloke,” said his wife, Helen Casey-MacDuff.

Now, during Motor Neurone Disease Action Month, Casey-MacDuff is sharing her husband’s story.

Read more 👇

'He was a real Kiwi bloke': Wife shares story to raise awareness of MND Helen Casey-MacDuff is sharing her late husband’s story during MND Action Month.

04/06/2026

🌭 This Saturday: Bunnings sausage sizzles for MND 🌭

This Saturday 06 June, Bunnings stores across Aotearoa are firing up the barbecues for MND Action Month — and you’re invited to stop by and show your support.

🕘 9am–3pm
📍 42 Bunnings stores nationwide
🙌 260+ amazing volunteers on the tongs

Every sausage sold helps fund support, advocacy, and research for people living with motor neurone disease — and helps bring MND into everyday conversations.

Some stores will also be hosting Ice Bucket Challenges, so keep an eye out 👀

💙 A huge thank you to our volunteers and to Bunnings for standing alongside the MND community once again.

👉 Find your local sizzle: www.bunnings.co.nz/stores

Let’s make time count — one sausage at a time.

03/06/2026

💚Behind their lime-green front door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose – even as motor neurone disease (MND) changes everything. The dynamic musical-duo generously opened their hearts and their home to share their story across Aotearoa and the globe, showing us exactly why MND Action Month matters.

🎵Music has shaped their lives. Chris is a drummer. Kendall is a singer, songwriter and guitarist. They’ve toured together, recorded albums, and shared stages. Chris played in the support band for the legendary Chris Isaak at the St James Theatre.

But their home also tells a quieter, harder story.

🥁A drum kit that once sat proud in the lounge now sits idle, tucked away in the bedroom. Motor neurone disease has taken away Chris’ ability to hold his drumsticks.

🎙️Still, Chris and Kendall focus on the ‘can do’ not the ‘can’t do’. They have big plans to write and record a third album together, using technology to recreate Chris’ drumming.

📋“That’s our key word – normal. Just carry on!” exclaims Chris. “I still make plans.”

👉🏼Read more about Chris and Kendall’s story: https://www.mndactionmonth.org.nz/chrismndstory or link in bio

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14 Erson Avenue, Royal Oak
Auckland
1345