ALS Philippines

We want to provide an update regarding Rilutek (riluzole) for ALS patients in the Philippines.

Local distribution:
• We have known that Rilutek is distributed by GetMeds, but it is available only through compassionate use, meaning the patient’s attending physician must request it.
• Supply is limited and availability may change, so caution is advised when sharing this information.
• We have also received information about a local supplier that patients may try to contact:

Supplier: Bihira Healthcare
Medication: Riluzole 50 mg
Price: ₱20,500 (56 tablets)
Delivery: via JRS or Lalamove
Viber contact: +63 939 240 7579

Community-shared experience:
• We have received reports from a member who was able to obtain Rilutek from international suppliers via IndiaMart (LEAF Pharma).
• They received their medication in less than a week, and the price was lower than previously reported (~$160 for a month’s supply).
• A prescription from a licensed physician is required to order.
• Shipping can be expensive, but some suppliers offer discounts for larger orders. Coordinating with other patients who are also purchasing may help reduce shipping costs and take advantage of bulk discounts.
• If you wish to be coordinated with other patients for potential bulk purchase, please let us know.

Important reminders:
• This information is shared for awareness only.
• We strongly recommend that patients coordinate with their attending neurologist before attempting any purchase.
• We cannot guarantee availability, price, or shipment success. Safety and proper medical guidance come first.

We hope this helps the ALS community stay informed while keeping everyone safe and guided by their doctors. 🙏

We’re still receiving many messages asking where Riluzole can be purchased.

If anyone has updated information on where it is currently available (pharmacies, hospitals, or verified suppliers), please share it in the comments so we can help others who are looking.

Also, if anyone has the means to purchase it regularly and is willing to allow others to join their purchase (group buying), please send us a private message so we can help connect people.

Let’s support one another by sharing reliable and helpful information. Thank you.🙏🏻 ALS Philippines