Gladiator X Project

Coming to a close with…..
Seizure Action Plan Awareness Week

Seizures are unpredictable
Having a plan in place …. Lifesaving

The 3rd pic is a small piece of Xavier’s Seizure Action Plan
inc follows the plan in place every time which not only keeps Xavier safe but allows them to learn more about his epilepsy and seizures. The team remains calm. We, his parents as well as his medical team do NOT want his emergency medication administered every time. Xavier has proven to show resistance to multiple medications. We do NOT want him to develop a resistance to this one. The plan is individualized for Xavier’s needs as it should be for anyone living with epilepsy.

Establish your plan today!

has covered the expense of the costly emergency medication for families. It’s an immediate need for those living with epilepsy.

First 2 pics & info. below copied from:

It’s Seizure Action Plan Awareness Week!

We can’t teach everyone we know seizure first aid, but even if we could, not all seizures are the same! That’s where a Seizure Action Plan comes in. It’s a customizable document that makes it easy for someone to help you during a seizure, even if it’s their first time. You can include information like when you need emergency medical treatment, how to use your rescue medication if you have one, and how to help you recover after the seizure ends.

Visit the Seizure Action Plan Coalition website, where you can find our fillable PDF SAP template and download for free, link in comments!

Sea turtles symbolize longevity, wisdom, patience, and endurance. Xavier picked a sea turtle for his balloon animal 21st annual Winter Walk Saturday 1/24. The walk is a reminder of community & support.

Copied from :
“January 26th is . That’s how many people will develop epilepsy in their lives. Onset is most common in children & older adults, but it can start at any age, for anyone, many times without a known cause.

Even though epilepsy effects so many people, there’s still so many people who don’t know:

There is more than one kind of seizure
Epilepsy is not contagious
You should never restrain someone having a seizure, or put anything in their mouth to “bite down on”
You cannot swallow your tongue during a seizure

Today, make it your goal to teach at least one person one thing about epilepsy 💜”

Monday: 1 in 26 is real! Education & awareness must continue around a topic that is rarely recognized nor talked about.

Yesterday evening, an example of awareness unveiled itself. Xavier and I were tooling around & made a final stop store in Stow, OH. We were commenting on the cute clothes & even singing to the fun music. I had my back turned to him but then no longer heard his voice. As I turned I saw his face stiffen then his body so I supported him as he fell to the ground in a full seizure. I caught the attention of the beautiful soul working explaining that he has epilepsy & it’s okay. I was able to retrieve his emergency pack from my back pack using his magnet on his VNS. This seizure was longer and it took him longer to return to baseline.

The beautiful soul working remained calm & listened to me ramble as I had tears streaming down my face as X was still seizing. I THANKED her for how calm she was. She did explain that she had training for another situation but never had to use it. Her ability to remain calm & available allowed me to remain CLEAR.

PLEASE WHEN you are a bystander:

Assess if the situation is emergent

If a caregiver is w/ the victim, FOLLOW their lead

REMAIN CALM bc 9/10 the caregiver is emotionally breaking, I do!

Symbolism of a sea turtle (patience/endurance)