Cure GM1 Foundation

Remembering Armand

“I was preparing myself to receive bad news, but my lack of awareness on metabolic conditions kept me hopeful that I would see her grow up, possibly with few limitations."
READ: .curegm1.org/batuls-story

Warning sign of GM1 gangliosidosis: clumsiness.
Children may tumble off chairs or trip when there is no obvious reason, even on flat surfaces. Frequent, unexplained falls can be one of the earliest signals of underlying neurological change in GM1.
Citation: Brigerom A, et al. GM1 gangliosidosis: the caregivers’ assessments of symptom impact and most important symptoms to treat. American Journal of Medical Genetics Part A, 2023.
Learn more: curegm1.org/about-gm1

There are so many ways to Do It For GM1. Move, bake, bike, swim, dine, or build a fundraiser around something you love. Every action helps raise awareness and support research for possible treatments for this devastating and fatal disease.

https://www.curegm1.org/do-it-for-gm1/

Build water into the day, every day.

Children with GM1 often cannot ask for a drink. Hydration cannot wait for thirst.

For tube-fed kiddos, talk with your care team about adjusting free-water flushes in the heat.