Steffens Scleroderma Foundation
www.steffens-scleroderma.org Ann's nature was to help others, and she participated in several research studies throughout her life.
06/30/2026
𝐒𝐜𝐥𝐞𝐫𝐨𝐝𝐞𝐫𝐦𝐚 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐌𝐨𝐧𝐭𝐡 may be coming to a close, but our commitment continues.
𝐖𝐡𝐚𝐭'𝐬 𝐚𝐡𝐞𝐚𝐝?
𝐌𝐨𝐫𝐞 𝐞𝐝𝐮𝐜𝐚𝐭𝐢𝐨𝐧 so future healthcare professionals better understand rare disease.
𝐌𝐨𝐫𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 shaped by patient experience.
𝐌𝐨𝐫𝐞 𝐚𝐝𝐯𝐨𝐜𝐚𝐜𝐲 that brings scleroderma and Degos disease stories into the light.
As we look toward the 𝐧𝐞𝐱𝐭 𝟏𝟎 𝐲𝐞𝐚𝐫𝐬, we move forward with optimism, hope and purpose.
Every conversation, every story, every partnership and every step in research brings us closer to a future of greater understanding, better care and greater possibility.
Thank you for standing with us, believing in this mission and helping keep awareness of scleroderma, Degos disease and rare disease moving forward.
𝐓𝐨𝐠𝐞𝐭𝐡𝐞𝐫, 𝐰𝐞 𝐜𝐨𝐧𝐭𝐢𝐧𝐮𝐞.
06/27/2026
World Scleroderma Day is fast approaching!
It’s a day to raise awareness, honor the people living with scleroderma and recognize the families, clinicians, researchers and advocates who stand beside them.
June 29 is right around the corner, and we invite you to take part in a simple act of support. Your participation helps advance education, awareness and advocacy for people affected by scleroderma.
Consider making a gift in honor of someone whose strength deserves to be recognized.
Donate here: https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ
Click here to claim your Sponsored Listing.
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P. O. Box 38037
Albany, NY
12203