Pray for Grace
Grace suffered a hemorraghic stroke as a result of a ruptured ateriovenous fistula while at school on Friday 9/15/17.
05/21/2019
Two weeks ago Grace had her yearly CT with angiography to take a look at the rupture sight and to check on her general neurovascular health. We are happy to report that the test showed that Grace's neurovascular system is that of a perfectly strong and healthy 17 year old. Her neuro team feels certain that she is not in danger of any future complications and have discharged her from the practice. She's done. Grace, go live your life.
10/03/2018
In our infancy, we were led by an amazing researcher Dr. William L. Young who's impact is felt all over UCSF. He wrote 's (National Organization for Rare Diseases) entire entry and advised us on our original fact sheet. Please read his NORD entry and be sure to share our latest fact sheet this month. While Dr. Young is no longer with us, his legacy is in every survivor. http://bit.ly/nordAVM
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