Being Positioned

Sharing a personal health update in honor of May being NF Awareness Month (a little late 🥴)! It’s truly been the hardest, but most important year of my life.

My situation has been incredibly uncertain and complicated to navigate. From suddenly losing my hearing while dealing with jaw issues, getting my port removed after 9 years, and discovering that the upstairs of our home was full of mold (which had been causing so many mystery symptoms the last 3 years)…it’s been a lot.

But through it all, God has shown me that our bodies are SO much more than a diagnosis. I am a whole human body, undergoing an incredible amount of stress and medical trauma. And it’s possible to support my body and teach it how to live and function in a calm/healthy way even with NF2.

This is a big part of why our retreat exists. Not just to “manage symptoms,” but to support the whole human behind the diagnosis. 🤍

If you or someone you love is living with NF2 or VHL, I hope this reminds you that you are not alone and that there’s still so much HOPE for you.

Applications for the fall retreat are open (Oct 1-4), so we’d love for you to apply! Or simply share this with someone who may need some encouragement.