The Scleroderma Cure Fund

One of the many cruelties about Scleroderma is that it doesn't discriminate against age. ABC30 Action News did a special story on Scleroderma and how it effects children.

Please share so that we can gain as much attention for our cause as possible: http://abc30.tv/1aRGPBH

Scleroderma in kids: A mystery disease Scleroderma affects about 300,000 Americans. There's no cure and doctors know very little about the mysterious disease. Now, a new center is making it a mission to find out more.

Amid the pain and uncertainty, Maritza Andrade forges ahead. “I work with what I’ve got and try to manage my limitations in the best way possible. My dream and life goal? To live!”

The Skin I live In: Living With —http://bit.ly/EnduringIt via The Corsair

Lilliane's story is not an uncommon one. Watch as Lilliane and her family get through every day life, together.

http://bit.ly/1Gwsg1D

Lilliane's Story Lilliane Grahek, 12, was diagnosed with scleroderma, a rare disease that involves the hardening and tightening of the skin and connective tissues, when she w...

A recent study has new findings that could lead to potential breakthroughs!

Check out the article and give us your thoughts:

http://bit.ly/12KxOqY

Good morning! We have a very special post from a member of our community. Has anyone thought they were in remission before only to experience these symptoms again? Please share and give Erin some advice!

"I was diagnosed with scleroderma when I was 13 and am now 30. I have lesions on my skin. My doctor put me on methotrexate until I was 20. Then wanted to try imuran. I have been on that until a few months ago. I got a new doctor and she didn't understand why the first doctor diagnosed me with scleroderma. She said my labs came back normal. She took me off the imuran and told me she wasn't comfortable prescribing it to me. She told me she thinks I am in remission. I have always had shortness of breath that my primary care doctor prescribed singular for and told me I had asthma. Since I have been off my medicine, I have back/shoulder pain on my right side and now it's going down my right leg. It feels like very right muscles, and it doesn't seem to matter how much I stretch. I don't know if this has anything to do with my scleroderma. Does anyone know if you have normal blood tests, does that mean you are for sure in remission? Or could my shortness of breath and muscle pain be the scleroderma? Just looking for any advice/knowledge."

-Erin Cambell