Rally for Raegan

Support S. 935 - Seizure First Aid Signage in South Carolina!

https://www.votervoice.net/mobile/EFA/Campaigns/134947/Respond

Legislation has been introduced in South Carolina (S. 935) that would require the Department of Public Health to develop a pamphlet or poster for state governmental entities on seizure first aid. These state governmental entities would be required to display this information in a visible and frequently visited location. The legislation could have a positive impact on the safety of not just those state employees with epilepsy, but everyone in the workplace, including fellow employees and possibly even constituents.

Support S. 935 - Seizure First Aid Signage in South Carolina! Legislation has been introduced in South Carolina (S. 935) that would require the Department of Public Health to develop a pamphlet or poster for state governmental entities on seizure first aid. These state governmental entities would be required...

Take action to support the National Plan for Epilepsy:

http://www.votervoice.net/Shares/BMzUsAC-ACXHdAZAheh7FBA

My message:

My name is Kourtney, and I’m writing to you not only as your constituent, but as a mother raising a child with epilepsy. For families like mine, epilepsy is not occasional or abstract—it’s constant, unpredictable, and something we have to plan our entire lives around.

My daughter, Raegan, depends on specialized care, consistent monitoring, and access to providers who truly understand her condition. Even with that, there is always an underlying fear—of breakthrough seizures, of complications, and of outcomes we can’t fully control. One of the most devastating realities within the epilepsy community is SUDEP, and it’s something no parent should have to learn about the way we do—through risk, not prevention.

Right now, support for epilepsy feels fragmented. Families are left to navigate complex systems on their own while trying to keep their loved ones safe. A coordinated national plan would bring much-needed structure, accountability, and progress—so that care improves, research advances, and fewer families have to live with the same level of uncertainty and risk.

This isn’t just about awareness. It’s about building a system that actually supports people living with epilepsy at every stage—from diagnosis to treatment to long-term outcomes. Families like mine need more than temporary solutions. We need a clear, committed path forward.

I’m asking you to support the development and implementation of a National Plan for Epilepsy so that families like mine are no longer navigating this alone.

www.votervoice.net

Ask Your Elected Officials to Join the Congressional Epilepsy Caucus!

www.votervoice.net

FYI (Georgia Specific)

After an IEP is approved, educators are LEGALLY BOUND TO FOLLOW THE PROVISIONS OUTLINED IN THE IEP. Including necessary services AND accommodations! The IEP serves as a legally binding document. Educators MUST adhere to the requirements to comply with IDEA (Individuals with Disabilities Education Act).

Georgia laws ensure that children with disabilities receive individualized, LEGALLY PROTECTED EDUCATIONAL SERVICES, with clearly defined team roles, content requirements, transition planning, and procedural safeguards aligned with Federal IDEA standards.

Georgia IEP laws are governed by both federal and state regulations. Georgia follows IDEA 2004 Framework. This mandates that public agencies provide FAPE (Free Appropriate Public Education) to eligible children.

Georgia law requires that each IEP includes:

• Present Level of Academic Achievement and Functional Performance (PLAAFP)

• Annual goals

• Accommodations, modifications, and related services

• Assistive technology & accessible instruction materials

• Least Restrictive Environment placement

• Progress measurement and reporting schedule to parents

• If behavior plays a part then Functional Behavior Assessments and Behavior Intervention Plans are drafted to address them.