Firefly Fund

Last week, the Zevra team had the honor of attending the Firefly Dreams Gala, a powerful evening dedicated to supporting rare disease research and education, specifically Niemann-Pick disease type C (NPC).

This year’s cowboy chic theme brought energy and heart to an unforgettable night. Most importantly, it was a moving reminder of why raising awareness for rare diseases like NPC matters so deeply.

We’re proud to stand alongside this community and support the mission.

In recognition of Rare Disease Awareness Month and Rare Disease Day (Feb 28th) Firefly Fund honors the more than 300 million people across the world living with a rare disease (National Institutes of Health).

We stand united with rare disease patients, families, clinicians, researchers and advocates supporting early diagnosis and those advancing research and life-changing, life-saving treatments.

Learn more about our core programs serving the community – patients, families and clinicians – with essential resources and support, advancing knowledge about the complexities of rare diseases: https://fireflyfund.org/our-programs/

💛💛💛 Love to our amazing Firefly Dreams Platinum Sponsors — LLK LLC, Cyclo Therapeutics, and Laura & Kyndel Bennett — for helping this night shine brighter.

Cyclo Therapeutics, a Rafael company
cyclotherapeutics.com

LLK LLC
llkllc.com

We’re so grateful to our presenting sponsor Zevra Therapeutics for helping bring our annual gala Firefly Dreams to life. ✨

Zevra is a rare disease therapeutics company with therapies approved in the U.S. for the treatment of Niemann-Pick disease type C (NPC).

Learn more
https://zevra.com