KBG Foundation

KBG Foundation

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Most people with KBG share at least some physical traits, including a triangular face, heavy eyebrows, curved fingers and spine, and short stature.

04/30/2026

Today is Undiagnosed Day.

For many families, the hardest part isn’t just the symptoms, it’s the waiting. The questions without answers, the appointments that lead to more appointments, and the feeling that something isn’t right even when no one can tell you what it is. Being undiagnosed can feel isolating, like you’re living in the space between what is known and what is real.

At the KBG Foundation, we know how long that road can be because we’ve lived it alongside so many families still searching for answers. You are not alone, and your story matters.

How long did it take for you or your loved one to receive a diagnosis?

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9000 Rockville Pike
Bethesda, MD
20894