One Rare

After a lot of hard work, we’re excited to announce that One Rare Experience will be held in Boston, MA July 29-August 1, 2026. Interested in possibly attending? Let us know by filling out a brief survey at

One Rare Our 2026 One Rare Experience (ORE) will be held from July 29th to August 1st at Boston college, Boston MA. The agenda is currently in the works but check out our past events tab to see the kinds of activity's to expect. We hope to see you there!

There's still time to join us at One Rare Experience in Albany New York, July 17-20!

https://www.surveymonkey.com/r/J8J8CB9

🌟 Join the 2024 One Rare Experience (ORE) on July 17-20 at the University of Albany! 🌟

This year, ORE is offering a free program for young adults with rare conditions that will focus on mental health and mindfulness. Expect four days filled with lifestyle, health, wellness sessions, art, employment workshops, and plenty of fun networking opportunities. Travel costs are covered if you apply ASAP!

Interested? Apply here: surveymonkey.com/r/J8J8CB9

Exciting News! Attendees will receive a free link to Overjoyed software, an accessible game controller developed by Anthony DeVergillo, to enhance social gaming experiences. Stay tuned for our virtual game night announcement in August!

Questions about Overjoyed or the OneRare Experience ? Email: [email protected]

Want to support One Rare Experience from afar? Consider donating to our Amazon wishlist! We would love your support to supply our community with games, snacks, first-aid supplies, and bedding (most needed).

Any contribution is incredibly appreciated!

One Rare Experience 2024 | Amazon Gift List

Today, February 29th, is Rare Disease Day. At One Rare we support young adults who are living with rare disease diagnoses to live as independently as possible, through social connections, mutual support, and providing opportunities for adventure!

Learn more about our organization here:

One Rare To improve the lives and futures of young adults living with rare disease through education, recreation and peer support