NKH Crusaders
NKH Crusaders, established in 2010, is committed to advancing research and supporting the people and caregivers affected by Nonketotic Hyperglycinemia, NKH.
06/09/2026
🐝 Join the 100: Your Voice, Your Impact 🐝
⏳ 40 Days to Go! ⏳
We're officially more than halfway through our 100 by 100 Campaign, and every NKH patient who joins the Citizen Health Registry brings us one step closer to a stronger future for our community.
Research needs real-world data. It needs the stories, experiences, treatments, challenges, and victories that only patients and caregivers can provide. Without patient participation, researchers are left trying to solve a puzzle with missing pieces.
https://www.citizen.health/ai-advocate/nkh-crusaders
By joining Citizen Health, you're doing more than contributing to research. You'll gain access to a powerful AI Health Advocate that can help organize and make sense of years of complex medical records, giving you a clearer picture of your loved one's healthcare journey.
Your records remain secure. Your family remains in control. Your experience helps drive discovery.
If you haven't enrolled yet, now is the perfect time to join the 100 and help ensure that the NKH community is represented in the research that shapes tomorrow's treatments.
💙 40 Days Remaining
💛 More Than Halfway to Our Goal
🐝 Join the 100: Your Voice, Your Impact
https://www.citizen.health/ai-advocate/nkh-crusaders
06/05/2026
Every program we offer, every family we support, and every research initiative we fund begins with people who choose to get involved.
Join us on June 15 to learn how you can use your time, talents, and passion to help drive progress for the NKH community. Whether you have an hour a month or are looking for a larger role, there's a place for you to make a meaningful impact.
🐝 Bee involved. Bee the difference.
🔗 Registry link https://nkhcrusaders.app.neoncrm.com/forms/volunteer-information-meeting
Click here to claim your Sponsored Listing.
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Boston, MA