Courageous Parents Network

Courageous Parents Network

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The PinkDrive USA
The PinkDrive USA

A nonprofit org. that provides curated digital resources to help caregivers navigate the journey.

05/02/2026

Am I going to be okay??

’s answer…

“No. Then, Yes. Then, no, no, no. Then, yes again.”

For parents grappling with this question, Morgan’s recent blog for CPN offers a reflection on how she learned to frame both the dark and the light after her daughter’s diagnosis. Find her piece at http://courageousparentsnetwork.org/blog

05/01/2026

Social media has transformed how families navigate complex medical journeys, creating unprecedented opportunities for connection, information sharing, and support.

For parents of children with medical complexity and rare conditions, online platforms can offer vital lifelines to communities who understand their unique challenges. Yet these same spaces also present risks that deserve careful consideration.

This webinar, featuring Dr. Karen Low and a panel of parents, explores the multifaceted relationship between social media and families managing complex pediatric health conditions.

Learn more and register: https://bit.ly/4295JsV

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Website

http://www.neurojourney.org/

Address


Boston, MA