Autism Deserves Equal Coverage

UCSF virtual rounds on COVID-19 for anyone interested. Primarily meant for my health care provider contacts but anyone welcome. I got the notification from my cousin.

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Group Brainstorm - let’s assume all ABA services need to continue, even in lock down. What do we need to do it safely!! Even if you done think it’s possible - put it down and we (at least I) will ask.

Hi all - I’m in the Bay Area in lock down “shelter in place.” Most providers in. CA are still providing services but some other are stopping them altogether or stopping them in “shelter in place” areas, and others are talking about laying off workers to avoid paying sick leave (not by choice but they think for survival). Short term survival may mean long term decimation. We are working tirelessly, asking for, and/or getting emergency exemptions, regulations, and emergency funding for the industry, but we also need to be figuring out how to keep these urgent healthcare services provided to as many kids as possible.

ABA for many/most/all kids is essential, not discretionary healthcare. Our lockdown Counties have deemed it essential healthcare and exempt from the lock down, but providers are not having an easy time navigating. Telehealth works for BCBAs but not direct care.

Pretty soon I predict all areas will be on lockdown. We need a discussion about it, all ideas are good ideas. Think way outside the box.

If the assumption is we continue providing telehealth for BCBAs when possible and Direct therapy for BTs and RBTs who are willing (with telehealth where appropriate), how can we do it safely? What do we need? Combat pay? Risk pay? masks? Gloves? How to make the kids not scared of the protective gear? Let’s make a list and then ask for it.

I’m CA we are asking for stuff and getting it. LA Unified closed schools and suspended all IEPs, (before the feds did), and we mobilized and asked and the Governor ordered IEPs continued.
My provider temporarily discontinued services because they weren’t sure they were essential health services, we asked and got our county to clarify in writing that they were (by 7am after a 2am email from me). I’m not saying all areas will be able to get stuff, but there amazing flexibility even at the federal level. They are moving fast and writing stuff that makes big strides, maybe causes unintended consequences, and then try to fix it.

Let’s assume everyone wants to do the right thing and continue services, what do we need to ask for. The ski is the limit. Don’t be constrained by whether you think you can get it. I’ll also post this on the FB page. Please only positive ideas, constructively point out problems and maybe someone else will solve them.

This is the smartest most amazing group of people I know. And we have individually and as a group gotten many things people never thought we could. What do we need???? We sure can’t get it if we don’t ask for it. We need your help in CA now and then you can use the info and model when it comes to your state.

GO!!!
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