N-Lorem Foundation
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Creating a better future for nano-rare, one patient at a time.
07/06/2026
At ChemGenes, advancing science is their purpose—and helping people is their passion. As a trusted partner, ChemGenes supports n-Lorem by manufacturing A*O drug substances in a range of batch sizes, from non-GMP to GMP standards. We’re proud to welcome back ChemGenes as a gold sponsor of the 2026 Nano-rare Patient Colloquium.
Thank you, ChemGenes, for your steadfast commitment to n-Lorem and to nano-rare patients!
The 2026 Nano-rare Patient Colloquium is coming soon! Join us October 7-8 in Cambridge, MA. Register for free to attend in person or virtually:
https://www.nlorem.org/2026-nrpc-registration/
07/01/2026
100 Episodes of the n-Lorem Patient Empowerment Program Podcast!
For the past four years, we have released two to three episodes each month with one goal: to empower patients and their families with knowledge as they navigate the complex landscape of rare diseases.
Each of the 100 squares represents an episode in our catalog, including interviews, lessons, Q&As, and “best of” episodes. We are proud to reach this milestone and to continue providing a forum where voices can come together focused on the nano-rare patient!
Our 100th episode with CNBC Squawk Box Co-Anchor, and mother to a child living with a rare disease, Becky Quick is now streaming! While you’re listening, please give us a five-star rating on Apple Podcasts or Spotify. It truly helps us climb the charts and makes it easier for others to find us!
🔗: https://youtu.be/54cvS7z_-c8?si=ccKz_A1HQue8K10D
We’re celebrating our 100th episode with a special guest, CNBC Squawk Box’s own Becky Quick! Becky’s daughter Kaylie lives with SYNGAP1, and their family’s rare disease experience inspired the creation of CNBC Cures, an initiative bringing together families, doctors, investors and regulators with one goal in mind: helping to raise awareness of, and improve patient outcomes for, the 30 million Americans suffering from rare diseases. Get to know Becky and her daughter Kaylie’s story in this episode of the n-Lorem Patient Empowerment Program podcast.
https://youtu.be/54cvS7z_-c8?si=nx-acd9uRmY4-DTM
06/29/2026
Hongene Biotech Corporation is a global specialist in oligonucleotide and mRNA CDMO services and raw material supply. As a trusted partner, Hongene provides raw material support to n-Lorem by supplying high grade phosphoramidites for A*O drug substance manufacturing. We’re excited to announce Hongene will rejoin us as a gold sponsor of the 2026 Nano-rare Patient Colloquium.
Thank you, Hongene Biotech, for your steadfast commitment to n-Lorem and to nano-rare patients!
The 2026 Nano-rare Patient Colloquium is coming soon! Join us October 7-8 in Cambridge, MA. Register for free to attend in person or virtually: https://www.nlorem.org/2026-nrpc-registration/
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