My FSHD

We are planning another video segment this time on the secondary related effects of FSHD, such a bipolar (believe by some to be connected), broken bones from falls, lower levels of bone density, breathing issues, hearing loss, vision complications, joint damage, pain, etc and what if any mitigating efforts you are taking or have taken to deal with them.

I am hoping some of you will post here what conditions are you experiencing beyond simply FSHD so we can present these to a broader audience.

Feel free to PM me too. We expect to bring doing a presentation online in mid February.

Thanks.