Team Mikey

Sitting outside the X-ray room while Mikey is inside alone feels suffocating. All I can see is a plain wooden door, but on the other side of it is my whole world.

And all my mind can do is spiral. Are they being patient with him? Are they listening when he’s uncomfortable? Are they treating him like the medically complex kid he is, or just another chart to get through? Then comes the other fear what if they find something? What if this changes everything again?

It’s strange how a simple door can feel so heavy. You just sit there staring at it, waiting, hoping, trying not to fall apart before it opens again.

Mikey has an appointment in the morning and I’m honestly struggling tonight. Every new appointment feels terrifying new people who don’t know him, don’t know our story, and another possibility of hearing something that could change our lives all over again.

I can’t sleep because I already know tomorrow will be another long day in the hospital. Part of me wants answers, and part of me is terrified of what those answers could be. Just send a little extra love our way because I don’t know if I can handle another diagnosis.

I’m exhausted. Burnt out. Moving, advocating, fighting for care, and constantly battling systems that are supposed to help has taken everything out of me. We’re currently waiting on approval for Mikey’s medical formula something he literally needs to survive and that I can’t just buy over the counter. It’s been a week, and in the meantime I’m rationing his food just trying to make it last.

I’m just really tired tonight.

Hi, hello, good morning. 💛

I wanted to pop in and do a little damage control before Mikey’s page gets turned into unnecessary drama.

I’m aware of the posts and conversations happening in Arizona regarding Mikey and his sisters’ biological father. We do not have contact with him, nor are we associated with him in any way. I cannot allow someone else’s reputation or actions to jeopardize the funding, support, and community we’ve worked incredibly hard to build for Mikey.

The facts are already out there, and there’s nothing I can do about that. What I can ask is that everyone remembers this is the page of a 10-year-old little boy. Please keep this space drama free. If anyone feels the need to discuss this further, message me (mom) personally rather than bringing it here. Most importantly, please keep all of this away from Mikey and his sisters.

For those around us and new here, our family is Mama (Shantae), Daddy (Roy), Mikey, and sisters K & E. We’ve been a strong family unit for 6 incredible years. Our home is built on love, support, laughter, bravery, peace, and resilience. We simply do not have room for drama, hate, or anger here.

If you’re here to support Mikey, we appreciate you deeply. Support him in whatever way fills your cup whether that’s prayers, shares, kind words, donations, or simply cheering him on. Just please leave anything negative at the door.

Thank you. 💛

https://gofund.me/0bf49795