MPN Research Foundation

Too many myeloproliferative neoplasm (MPN) patients feel alone — and the data proves it.

The MPN Research Foundation’s 2026 MPN Unmet Needs Assessment found that:
• 63% of patients feel others don’t understand what they’re going through
• 64% report a negative impact on their quality of life

These findings highlight a critical gap, not just in care, but in connection and emotional support.
MPN Research Foundation is bringing these unmet needs to light — helping drive awareness, research, and better support for the MPN community.

And this is where organizations like Imerman Angels play a vital role. Through their 1:1 peer support model, Imerman Angels connects patients and caregivers with someone who truly understands the MPN journey, helping to close the empathy gap identified in the assessment.

Because no one should have to navigate an MPN diagnosis feeling misunderstood or alone.

Learn more about support: https://f.mtr.cool/uxtsmseorn

If you would like to gain access to the 2026 MPN Unmet Needs Community Assessment, please email: [email protected]

One week to go!

Scientific presentations are a major way myeloproliferative neoplasm (MPN) research is shared, but they’re not always designed for patients and caregivers.

Join us next week for MPN Pathways: Empowered Voices in Research
Patients’ and Caregivers’ Guide to Scientific Presentations.

Featuring:
• Amielle Moreno, PhD, Scientific Content Manager, MPN Research Foundation
• Tyler Parsons, PhD, MPN researcher and member of the MPN Research Foundation Patient Impact Council

Date: June 18
Time: 5–6pm CT
Virtual | Free | Recording available

Learn practical strategies to identify key messages, understand scientific language, and engage more confidently with MPN research.

Register today to earn credit toward your MPN Research Foundation Research Advocate Certification: https://f.mtr.cool/ewotnynbrj

Scientific research shapes progress in myeloproliferative neoplasm (MPN) care but scientific presentations aren’t always easy to follow.

Join us for MPN Pathways: Empowered Voices in Research: Patients' and Caregivers’ Guide to Scientific Presentations.

Date: June 18
Time: 5–6pm CT
Location: Virtual

Free | Recording available

Featuring:
• Amielle Moreno, PhD, Scientific Content Manager, MPN Research Foundation
• Tyler Parsons, PhD, MPN researcher and member of the MPN Research Foundation Patient Impact Council

Together, they will break down how scientific presentations work and how to find the key message, even when the details feel complex.

Register today: https://f.mtr.cool/gpvwtanhtv