Action Learning Network

Making waves in Fort Lauderdale 🌊

Join us in congratulating the 3 ACTION members presenting at next month! We’ll share more about each presentation as we get closer.

ASAIO Journal

🧠 In honor of American Stroke Month this May, we’re proud to highlight the power of collaboration in advancing VAD patient care. Together, we’ve moved toward an aspirin-sparing approach for HeartMate 3 patients, and the results are encouraging! Over two years, we’ve seen a reduction in bleeding events with no increase in stroke risk.

Progress like this is only possible through dedicated teamwork. We’re incredibly grateful for our community of providers, researchers, patients, and families who continue to work together to make a difference. Stay tuned - publication is coming soon!

🎉 Five years ago, ACTION launched the MD Registry with a simple goal: to better understand cardiac disease in Duchenne muscular dystrophy (DMD).

Today, more than 1,500 patients are part of that effort.

Through this collaborative effort, we’ve gained important insights into how cardiac disease develops and progresses in DMD, reinforcing the importance of early recognition and longitudinal care.

At ACTION, the MD registry supports:
• Earlier identification of cardiac involvement
• Data-driven care strategies
• Collaboration across centers to reduce variability

Because better data leads to better care AND better outcomes.

Learn more here: https://bit.ly/4e7TBQ9.