CDG CARE

Happy Birthday, July stars! 💚🌟
You shine as bright as the warm summer sun
Wishing you warmth, laughter, and love
And a year filled with joy and adventure and fun. 🎈

Also celebrating birthdays in July...
Anderson, PMM2-CDG 🇺🇸
Parker, ALG12-CDG 🇺🇸
Peightynn, PMM2-CDG 🇺🇸
Adnane, ALG11-CDG 🇩🇿
Ashlynn, PMM2-CDG 🇺🇸
Merve, MAN1B1-CDG 🇹🇷
Ridley, MAN1B1-CDG 🇺🇸
Emmett, 🇺🇸
Su'mayyah, PMM2-CDG 🇺🇸
Travis, 🇺🇸
Faye, DDOST-CDG 🇺🇸
Nika, PMM2-CDG 🇸🇰
Oliver, PMM2-CDG 🇺🇸
Raphael, PMM2-CDG 🇱🇮
Joseph, ALG8-CDG 🇬🇧
Keira, FUT8-CDG 🇳🇿
Mikhail, COG8-CDG 🇷🇺
Patrik, PMM2-CDG 🇸🇮
William, TRAPPC11-CDG 🇺🇸
Aiden, PMM2-CDG 🇺🇸
Danica, COG4-CDG 🇺🇸
Damian, PMM2-CDG 🇷🇴
Grace, PMM2-CDG 🇺🇸
Damian, GET4-CDG 🇺🇸
Denley, PMM2-CDG 🇦🇺
Erhan, SRD5A3-CDG 🇦🇺
Lauren, PMM2-CDG 🇬🇧
Paloma, PMM2-CDG 🇧🇷
Karlee, PIGN-CDG 🇺🇸
Ploae, PIGT-CDG 🇷🇴
Terukazu, PMM2-CDG 🇯🇵
Jonathan, PGAP1-CDG 🇩🇪
Luca, ALG3-CDG 🇦🇷
Rodriguez, PIGV-CDG 🇮🇹
Theodore, PIGN-CDG 🇺🇸
Wilho, PIGA-CDG 🇫🇮
Pavol, ALG3-CDG 🇸🇰
Gianna, PIGN-CDG 🇺🇸
Rachel, PIGN-CDG 🇺🇸
Harrison, PGAP3-CDG 🇺🇸
Anna, PIGS-CDG 🇺🇸
Hannes, PIGW-CDG 🇺🇸
Jamie, ALG8-CDG 🇺🇸
Frances, DHDDS-CDG 🇺🇸
Oscar, MPI-CDG 🇧🇪
Ralpy, PIGA-CDG 🇬🇧
Charnice, PGAP1-CDG 🇿🇦
Zara, PMM2-CDG 🇬🇧
Alich, NGLY1 🇩🇿
Jude, ALG1-CDG 🇺🇸
Savannah, EDEM3-CDG 🇺🇸
Kayla, MOGS-CDG 🇺🇸
Marina, PMM2-CDG 🇺🇸
Vera, PGAP3-CDG 🇺🇸

𝐁𝐢𝐠 𝐧𝐞𝐰𝐬 𝐟𝐨𝐫 𝐨𝐮𝐫 𝐂𝐃𝐆 𝐟𝐚𝐦𝐢𝐥𝐢𝐞𝐬: 𝐭𝐞𝐱𝐭 𝐫𝐞𝐦𝐢𝐧𝐝𝐞𝐫𝐬 𝐚𝐫𝐞 𝐡𝐞𝐫𝐞. 📲💚

We know how easy it is for an important email to slip by when you're deep in the day-to-day of caregiving. So CDG CARE now sends text message reminders — conference deadlines, community calls, time-sensitive advocacy alerts, and new research opportunities, delivered straight to your phone, anywhere in the world. 🌎

Here's how to make sure you're getting them:
✅ Already in our Family Resource Network? Check your inbox - our June edition of Network News went out with the link to opt in to texts. Click it and you're set.

🤍 Not part of the network yet? Now's the perfect time to join. Sign up here: https://cdgcare.org/register-with-cdg-care/

❓ Not sure if you're registered? No problem - just email me at [email protected] and I will check for you.

You shouldn't have to miss the moments that matter. Let's stay connected. 💛

🎥 NOW LIVE: Episode EIGHTEEN of the 2026 CDG Education & Research Miniseries!

This episode features Dr. Rose Marino, Chief Medical Officer of Glycomine, Inc., who provides an update on Glycomine's clinical development program for PMM2-CDG.

As one of the most closely watched global therapeutic programs in the CDG community, this presentation offers insight into the science, clinical development strategy, and ongoing efforts to advance potential treatments for individuals living with PMM2-CDG.

Dr. Marino discusses the rationale behind Glycomine's approach, progress to date, and the broader role that clinical research and industry partnerships play in bringing new therapies to rare disease communities.

💚 An important update for families, clinicians, researchers, and advocates following the evolving treatment landscape in PMM2-CDG.

▶️ Watch Episode EIGHTEEN: https://youtu.be/p9tZ5TDIS2s?si=7ci0nbb26di1qjL8

📚 Explore the growing 2026 CDG Education & Research Miniseries and subscribe to the CDG CARE YouTube channel for new episodes released every week.



This session provides a valuable look at one of the leading clinical development programs currently underway in the CDG community. 💚

2026 CDG Miniseries | PMM2-CDG Clinical Development Update | Dr. Rose Marino | Episode EIGHTEEN 2026 CDG Education & Research Miniseries | Episode EIGHTEENIn thi...