NH Rare Disorders Collaborative
Enabling connection, education, and advocacy across rare disorder and patient support groups in NH.
06/12/2026
If you or someone you know has been accused of child abuse because of symptoms of your child's Rare Disease, I need to hear from you! 🦓
I need THREE families to testify for a bill similar to the one passed in Florida.
Contact me at: [email protected]
Bipartisan support for considering rare medical conditions in child protective probes • Florida Phoenix A bill inserting further medical evaluation into cases of suspected child abuse received unanimous support in its first committee stop Monday. The Senate Children, Families, and Elder Affairs committee approved SB 42, sponsored by Sen. Barbara Sharief. The bill would provide more time and opportunit...
06/08/2026
Update on the Right to Try Bill.
https://granitegrok.com/new-england/nh/2026/06/cornerstone-right-to-try-expansion-passes-and-fails?fbclid=IwdGRjcAST48NjbGNrBJPjvmV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHvF45fgpbCjyCFSFBoiAw4V8vW93Kyx_b4-ClroDHYWYtn1kelyVC3qYVS47_aem_oRpAxZpGECFPOtVC38G5BQ
CORNERSTONE: Right To Try Expansion Passes and Fails - Granite Grok HB 1735: A Setback for Right to Try in New Hampshire After several weeks of negotiations and efforts to rescue HB 1735 — championed from the start by prime sponsor Rep. Brian Cole — the Senate brought the bill to a final vote on Thursday, June 4 and passed it with an amendment that rendered it...
The Right to Try Bill is dead.
From Cornerstone Action
Setbacks in the Senate,
Bravery in the House
This has been a painful week at the State House. The events of these past several weeks have highlighted more than ever the need for faithful Christians in New Hampshire to be politically engaged - through running for office, recruiting faithful candidates, and using our voices to encourage our elected officials to do the right thing. To all of you who have spent time the past several months calling and writing your legislators to advocate for life, family and liberty in NH, thank you for standing with us. This session has tested us. But the people of faith in New Hampshire have not given up, and neither have we.
🔴 The Long Death of Right to Try
We are deeply disappointed to report that the Right to Try expansion is dead — not because it lacked support, but because a small group of Republican senators refused to let it live.
The bill, HB 1735, would have expanded New Hampshire's Right to Try law to give patients suffering from debilitating conditions access to experimental therapies that may offer them relief when nothing else has. It had bipartisan support in the House. It had the support of the Governor. It had the support of patients and families across the state who are out of options and running out of time.
The Senate killed it anyway — voting to send HB 1735 to interim study, which is Concord's polite way of shelving a bill without having to vote against it directly.
The House was not ready to give up. Members added the original Right to Try text as an amendment to SB 504, giving the bill a second chance at life. The Senate responded by voting to non-concur with the House — and then, when the House requested a committee of conference to work out a compromise, the Senate refused even that.
At that point, Senator Rochefort — the same senator leading the charge on the breast-surgery bill you will read about below — attached SB 504 to a House bill, HB 194. The House again requested a committee of conference, willing to negotiate, willing to find common ground. The Senate would not accede to anything. There was no compromise offered, no middle ground sought. The Senate simply stonewalled until the effort collapsed.
House Speaker Sherman Packard captured the frustration well: "We are disappointed that the State Senate chose not to advance what would have been a revolutionary bill. The House has repeatedly stood to ensure that patients and their doctors have every option available in the pursuit of better health... The Senate declined to pursue this legislation, turning down billions of dollars of economic activity and shutting down the expansion of health and wellness pathways for every Granite Stater."
The people who would have benefited from this bill are real. They are your family, friends, neighbors— people in pain, people who have exhausted every approved option, people who simply wanted the right to try. The Senate let them down at every turn.
I know this is short notice, but I just saw this video about a Rare family and the free online showing is tonight.
Click on the link and register. There will be a Q and A afterwards!
https://www.facebook.com/share/r/1JVG1nQibd/
05/21/2026
We may have lost this battle, but we are not going to stop fighting!
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Concord, NH