Team Cannon CAN
A mom on a mission to save her bestie from a rare genetic disease called Sanfilippo Syndrome đź’ś
05/05/2026
Cannon and I made cloud dough this weekend…. However Cannon thinks we actually made a new hat. Sometimes, life is all about how you look at it 🤷🏼‍♀️
Cannon has been struggling with the change of season/pressure changes… and the days have been long, and challenging. We went several months with minimal melt downs, and currently meltdowns are a daily occurrence - and his amazing “school mom” and “teacha” work tirelessly to come up with new approaches to help calm Cannon during those moments he’s struggling at school, but unless you’ve personally dealt with Cannon while he is in the middle of melt down, it’s truly impossible to understand how challenging it is to help Cannon calm down in those moments. Cannon has no concept of danger and is quick to elope at any opportunity he sees. He is also incredibly strong (and tall!) and supporting Cannon when he is struggling to regulate his emotions is both mentally and physically draining. I am so thankful for the love and care he receives at school, and when Cannon is struggling at home I remind myself that I will happily go through the most challenging of days with Cannon, as opposed to living a life without him. He continues to let his little light shine and brings so much joy to this world. 💜
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