BePositive4Jordan

Reunited and It feels so good! Thursday was such a good appointment! If you been a day 1 fan, you probably remember me sharing Amire story! Amire and Jordan both had the LVAD and received a heart transplant the same year! Amire was 8 at the time and Jordan was 12! Their bond is a special bond! 5 years post transplant they were able to catch up and enjoy their teenage moments!

There’s a common misconception that hospice is only about the final days of life. The truth is, hospice is about living fully, with comfort, dignity, and support—for as long as life continues.

Hospice care is not “giving up.”
It’s choosing quality of life, expert symptom management, emotional and spiritual support, and a team that shows up consistently. Hospice nurses, aides, social workers, chaplains, and physicians bring steady strength through uncertainty, setbacks, and unexpected turns.

And yes—sometimes that journey includes re-transplantation. Hospice stamina shows up in:
• Walking alongside patients through hope and uncertainty
• Supporting families through difficult conversations
• Providing comfort that allows patients to stay focused on healing possibilities
• Remaining present even when the outcome is unknown

There’s a belief that hospice means the end. For Jordan, hospice has meant support while still fighting. It has meant comfort on the hardest days, symptom relief when his body is exhausted, and a team helping him preserve strength while preparing for the possibility of a second heart transplant.

A re–heart transplant isn’t just medical—it’s emotional, physical, and relentless. It comes with waiting, uncertainty, fear, and hope all at once. Hospice has walked beside Jordan and his family through every stage—managing pain, breathlessness, anxiety, and the emotional weight no teenager should have to carry.

Hospice didn’t remove hope.
It helped hold it steady.

By focusing on quality of life, hospice allowed Jordan to conserve energy, stay as strong as possible, and face each day with dignity—whether that day brought setbacks or the possibility of a second chance at life.

Jordan’s journey reminds us that hospice is more than end-of-life care.
It is care during the fight.
Care during the waiting.
Care when the path is uncertain and the stakes are everything.

At just 17 years old, Jordan shows us what resilience looks like—and how hospice stands strong beside patients and families, no matter how complex the journey.

Jordan is only 17. An age meant for school milestones, plans for the future, and discovering who you are becoming—not facing the reality of needing another heart transplant. Yet Jordan carries a strength far beyond his years.

It gives hope that everything Jordan needs is cover 100% under hospice. If you have the chance to get hospice, do your OWN research and education on what hospice brings to the table, not just cause of the stamina if its name.

As we enter 2026, we choose to trust Him completely:
“For I know the plans I have for you,” declares the Lord… “plans to give you hope and a future.” (Jeremiah 29:11)

Praying for healing, peace, strength, and miracles—for Jordan, for every family walking a similar road, and for the hospice teams who serve with love and purpose.
2026, I’m coming in with faith.
My son will receive his second heart transplant.
I am claiming healing, strength, and life.
I am declaring that all my children will be healthy.
We’ve seen God move before, and He’s not done with our story.
Fear didn’t win. Faith did. 🙏🏽✨
“ Forget the former things, do not dwell on the past,See I am doing new things”-Isaiah 43:18-19
To all our family & friends; Happy New Year!

Welcome, 2026. We trust You, Lord. 🙏✨

Many of you know my son, Jordan, and the battle he’s been fighting with unimaginable strength. After surviving a heart transplant in 2020, he is now facing heart failure again, along with stage 3 kidney failure, and is currently being re-evaluated to be placed back on the transplant list. Been hospitalized for 3 weeks as so far currently at Duke! Through everything—hospital stays, endless procedures, and days filled with uncertainty—Jordan still finds ways to smile, laugh, and hold on to hope. ❤️ As we continue this journey, many people have asked how they can help or bless him. He created a wishlist with items that bring him comfort, joy, and a little bit of normalcy while he continues to fight the hardest battle of his life! 👉 Jordan’s Christmas Wishlist:

Check out my list on Amazon

To everyone who has donated, shared our story, prayed for us, or simply held Jordan in your thoughts—thank you. Your kindness is carrying us through one of the hardest moments of our lives.

Right now, Jordan is very malnourished, and we are working closely with his medical team to help him gain the weight he needs in order to be placed on the transplant list. He Is still hospitalized here at Duke! This is week going on week 4! It’s a stressful and emotional journey, but your support has given us strength, hope, and the ability to focus on what matters most: helping Jordan heal.

Every donation, every message, every prayer, and every act of love has made a real difference. You’ve helped lighten a load that no parent ever expects to carry.

From our family to yours — thank you for standing with Jordan. Thank you for believing in him. Thank you for loving him through this fight.

We are forever grateful. 💛


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