Hope for PDCD Foundation

Hope for PDCD Foundation

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Collaboration and research for genetic medicine for Pyruvate Dehydrogenase Complex Deficiency. @hopeforpdcd

Photos from Hope for PDCD Foundation's post 05/13/2026

Definitely having some FOMO watching the American Society of Cell & Gene Therapy conference happening in Boston this week 🧬✨

We’re so excited to see friends of Hope for PDCD Foundation .podcast and and members of our research community with a poster on the E75A mouse model and future gene therapy approaches for PDCD.
It’s encouraging to see PDCD represented at a conference like ASGCT and to watch the research momentum continue to grow. 💜💚

04/28/2026
Photos from Hope for PDCD Foundation's post 04/27/2026

This past weekend, the Hope for PDCD Board of Directors came together for a special hybrid retreat—some of us in person, others joining remotely, but all united by the same purpose. 💚 💜

We carved out intentional time to deepen our connections with one another, reflect on how far we’ve come, and reenergize for the work ahead. Most importantly, we rolled up our sleeves to strategize and lay the groundwork for the next chapter of Hope for PDCD.

Our focus is clear: advancing fundraising efforts, accelerating research, and strengthening family engagement so that no one in our community feels alone on this journey.
To our incredible board members—thank you for the time, heart, and dedication you bring to this mission. And to your spouses and family members, who made it possible to travel, show up, and fully engage—especially while coordinating care for medically complex children with PDCD—we see you, and we are so deeply grateful. Your support makes this work possible.

And to our broader PDCD community: everything we do is driven by you. We are honored to walk alongside you and remain deeply committed to building a stronger, more hopeful future together.

Onward. 💫

04/20/2026

The FDA has acknowledged that traditional trials are often impossible in ultra-rare diseases like PDCD. This is the moment to show how modern regulatory pathways can work for patients who cannot wait.

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1106 Buckbrush Drive
Folsom, CA
95630